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Small fiber neuropathy?
I started with pain in my foot and his fingers 7 years ago. I described like sunburn pain at the moment and went to a Dermatologist for nothing. Later i went to a GP who give me blood test to do and EMG. All ok. the pain/sensibility dissapear on 2 months maybe , the following years i reasearched with new GP and neurologist for nothing, year after year the pain seems to be more spaciated (good news) but the last year in nov i started with a big pain even in new parts of the body and was very consistent since then :(. This sounds like neuropathy? neuropathy comes and goes and can be a fixed pain after years?- The only exam is positive is QST but i dont know if is confideable.
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Cliffman :) |
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If this biopsy and other specific studies turn negative it means that is a mental problem like a psychiatristc told me?? I dont believe in that crap. I didnt feel as my worst metal year but my worst in term of that problem. I dont trust in psychiatrist. But my neurologist think on psychiatric before did the test and how it was positive he I discard the option |
I don't think the biopsy is 95% accurate if you take into account that the biopsy might not be taken from the site of the damage. I've seen lower accuracies quoted. You can have a patchy distribution of SFN and sometimes neurologist will take 1 or 2 biopsies from your leg or foot only.
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Maybe a better way to think of it is the biopsy is highly accurate only if they get the precision correct.
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Yes--
--madisongrrl has a point--and looking for posts under my name will bring up a lot of explanation as to how, given the protocol and standards, sometimes the interpretation of skin biopsy findings can lead to one being designated one is "normal" erroneously--but at least the skin biopsy is easy to do: a few shots of a local anesthetic, 3mm patches of skin removed, a few band-aids.
It's the processing and interpretation that is tricky--special stainings and electron microscopy is involved, and only a few centers have these AND people trained in what to look for. |
Thanks guys, i have one last question.
in case of not having many medical tests that prove the disease, there are specifications to see if pain is neuropathy or something else?. For example. *The pain comes and goes by seasons, *The pain improves with a good distraction *The pain improves after a good sleeping *The pain is the same after your training. Those were just few examples. My question is if there are specifications medically recognized. I already did a lot of MRI, EMG, one QST many blood test but of course i will continue with test the next years and i want to know if somebody have idea of what i asked. Thanks! |
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