NeuroTalk Support Groups - Feeling weak & I didn't even do a whole lot HELP!!

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Feeling weak & I didn't even do a whole lot HELP!!

Have any of you felt sooooo weak after doing simple tasks? I'm feeling that right now and I've never felt this weak before. I literally walked around Walmart to get some baby wipes and diapers for my daughter so pretty much 15 minutes tops then I drove to Costco to pick up a few items probably another 15 minutes so total 45 minutes walking/driving and I am sooooo weak I can barely talk. I feel like I can't catch my breath, the CRPS side which is my entire left side feels like there's an elephant sitting on my shoulder I can barely move that side and I feel as tho I ran a marathon or something because I didn't really exert myself too bad but it FEELS like I did. What do I do? I'm tired and can barely get a sentence out without feeling out of breath. I feel like I'm dying over here! Help say something to make me feel better please!!!!!

Jenn,

I find you being so out of breath you can't get a sentence out worrisome. This being brand new raises concern too. Pain and fatigue are things we are all familiar with and we probably all know our limits fairly well.

What you are experiencing sounds like it has the possibility of being something else. If you don't get better, feel worse or have concerns it is something serious please get checked out. This might mean going to the ER if you deem it necessary. Just take care of you okay?

:hug:

i agree with littlepaw. when i was out of breath alot after rsd i had an ekg done and they found i had an abnormal ekg but after a few more stress tests they said i was fine and that it was just anxiety. plus i got fibromyalgia two years after rsd and i also have had endometriosis removal twice in the past few years. because of all this i tire easily but am trying to walk a little every day (weather permitting) with my dog for my new years resolution so that i can breath a little easier and get some of my stamina back. it does boost my energy up a little and helps with my breathing so maybe that may help you. a little mild exercise each day helps keep our muscles from stiffening up. i would check with your pm dr first to see what he thinks is best for you. and i would maybe go to a cardiologist just to check your heart to see if that is what is causing your shortness of breath. it could also be anxiety or panic attacks but better safe then sorry. mild aqua therapy is also great but the water has to be warm enough for me which is hard to find at some health spas. i hope you start to gain more energy (maybe by exercising) and feel better soon.

Quote:

Originally Posted by IamJenn (Post 1192527)

I get what I simply call CRPS weakness quite often. I describe it like trying to drag every inch of my body through mud. When I get this way, it makes moving around laborious and I'm so weak feeling that I don't do much at all on those days. I greatly dislike it, and I'd say I get CRPS Weakness about once or twice a month sometimes even three times a month. There were even a couple of times that it landed me in the E.R. My doctor has told me that it is just one more symptom of my disease. Remember, if you need to contact your doctor, do not hesitate.

I get this sometimes...I attribute it not only to my activities today...but the day before and the day before that and the day before that, etc. Every day just getting out of bed and facing the day takes so much effort and sometimes I just hit that limit where my body says, "NO"...and no stubbornness on my part can make it move. So then I rest and relax...take it easy...and tomorrow continue on as usual. If you are concerned about it...check with your doctor as it could be something else...but this happens to me a few times a month depending on what exactly I have been doing...happens more often when I'm not sleeping well.

Hi all....

It called in sick and im laying here in bed STILL feeling weak as heck, I had to bust out my trusty cane just to go to the bathroom because I can barely walk there on my own. Thank you all for responding and all your concerns. I've felt weak before but NEVER quite like this. Called PM docs office to report what I'm feeling and I'm still waiting for a call back but I doubt it as its already lunch time and half the day is gone. I told my husband last night that if it gets worse that he might have to take me to the ER, but luckily it didn't get any worse but it really hasn't gone away either.

Littlepaw, yeah it worried me tremendously too with the whole not being able to get a sentence out without labored breathing. I really did considered going to the ER but I guess I was so tired I pretty much knocked out early. I hope it's not "another" thing I have to deal with because I'm already dealing with too much as it is! 😞 Thanks again for thinking bout me I appreciate your concern!!!! ❤️

Rsd me....walking in general whether I'm flaring or not is not an easy task. My left leg feels like I'm having to drag it and I got a funky gait...I like to call it my "SWAG" or my "pimp walk" to make me feel better about myself but it's really because it hurts too bad to put full pressure on the foot. Not to mention, I think it's spreading to my right foot too so it's really a bummer for me. I do have anxiety & get the occasional panic attack but this didn't feel anywhere near to it. It's different I can tell. I would LOVE to get into the water to work out, but like you said it's VERY hard to find a warm pool, and there's no way I'm dipping any part of my body into the ocean....which is sad because I live in paradise & I've enjoyed the beach soooo much but now whenever we go there I'm stuck on the sand under a tent with a blanket, sweats and a jacket 😭

Spike, you described it to a T! It literally feels like I'm drugging thru thick mud! It's crazy!!!! When you went to the ER, what did they do for you? I debated heavily about going last nite but fell asleep before I could make the final decision lol. Which is probably a good thing but it wasn't a restful sleep so maybe not. Lol! I honestly feel so exasperated that even getting up & moving in my bed to drink some tea takes so much effort. This hasn't happened before or actually not to this extent, I've gotten weak but never quite like this and it sucks big donkey balls!!!!!!!! I wish I could corral you ALL and bring y'all with me to my drs so they'd know I'm not making this crap up.

Catra121, I get you completely. It's such a pain in itself to have to limit yourself each day for the simple fear that maybe tomorrow I'm gonna go down for the count. I hate that! I don't sleep well every night and I pretty much lounged & watched movies all weekend not too strenuous stuff and I still got wiped out like I did. It's really crazy how this fricken disease can just rip you apart from one day to the next. It's like we live our lives on the roulette wheel never knowing what roll of the dice we're going to get. Pretty crappy stuff!!!!

Hey btw just throwing it out there.....I do work full time for the government but I don't know how much longer I can work. Each day gets harder and harder to manage, do y'all think I should go down the SSDI route & if so where or how do I start . I feel so dumb for asking but I know the clock is ticking and I don't have much time to continue working in my field full time. Any advice is truly appreciated!

Thank you all I have no idea what I would do without you all!!!!!!! ❤️❤️❤️❤️❤️❤️

Quote:

Originally Posted by IamJenn (Post 1192698)

Hi all....

It called in sick and im laying here in bed STILL feeling weak as heck, I had to bust out my trusty cane just to go to the bathroom because I can barely walk there on my own. Thank you all for responding and all your concerns. I've felt weak before but NEVER quite like this. Called PM docs office to report what I'm feeling and I'm still waiting for a call back but I doubt it as its already lunch time and half the day is gone. I told my husband last night that if it gets worse that he might have to take me to the ER, but luckily it didn't get any worse but it really hasn't gone away either.

Littlepaw, yeah it worried me tremendously too with the whole not being able to get a sentence out without labored breathing. I really did considered going to the ER but I guess I was so tired I pretty much knocked out early. I hope it's not "another" thing I have to deal with because I'm already dealing with too much as it is! �� Thanks again for thinking bout me I appreciate your concern!!!! ❤️

Rsd me....walking in general whether I'm flaring or not is not an easy task. My left leg feels like I'm having to drag it and I got a funky gait...I like to call it my "SWAG" or my "pimp walk" to make me feel better about myself but it's really because it hurts too bad to put full pressure on the foot. Not to mention, I think it's spreading to my right foot too so it's really a bummer for me. I do have anxiety & get the occasional panic attack but this didn't feel anywhere near to it. It's different I can tell. I would LOVE to get into the water to work out, but like you said it's VERY hard to find a warm pool, and there's no way I'm dipping any part of my body into the ocean....which is sad because I live in paradise & I've enjoyed the beach soooo much but now whenever we go there I'm stuck on the sand under a tent with a blanket, sweats and a jacket ��

Spike, you described it to a T! It literally feels like I'm drugging thru thick mud! It's crazy!!!! When you went to the ER, what did they do for you? I debated heavily about going last nite but fell asleep before I could make the final decision lol. Which is probably a good thing but it wasn't a restful sleep so maybe not. Lol! I honestly feel so exasperated that even getting up & moving in my bed to drink some tea takes so much effort. This hasn't happened before or actually not to this extent, I've gotten weak but never quite like this and it sucks big donkey balls!!!!!!!! I wish I could corral you ALL and bring y'all with me to my drs so they'd know I'm not making this crap up.

Catra121, I get you completely. It's such a pain in itself to have to limit yourself each day for the simple fear that maybe tomorrow I'm gonna go down for the count. I hate that! I don't sleep well every night and I pretty much lounged & watched movies all weekend not too strenuous stuff and I still got wiped out like I did. It's really crazy how this fricken disease can just rip you apart from one day to the next. It's like we live our lives on the roulette wheel never knowing what roll of the dice we're going to get. Pretty crappy stuff!!!!

Hey btw just throwing it out there.....I do work full time for the government but I don't know how much longer I can work. Each day gets harder and harder to manage, do y'all think I should go down the SSDI route & if so where or how do I start . I feel so dumb for asking but I know the clock is ticking and I don't have much time to continue working in my field full time. Any advice is truly appreciated!

Thank you all I have no idea what I would do without you all!!!!!!! ❤️❤️❤️❤️❤️❤️

You know, what it sounds to me like is happening with you is that CRPS is getting more aggressive with you and the weakness that you are beginning to feel is what many of us also are currently experiencing regularly. Yet, I want to say, I really hope not, because once I began feeling zapped most days, I really started to drag through the day, and still do!

Also,

The SSID route may go through the path of being put on disability through an insurance company first. I know that with many insurance companies, after you have been receiving their disability benefits for a given amount of time, it is part of their policy to move you over onto the SSID next. You must qualify for both the insurance coverage first and then the SSID after the set amount of time. I don't know if the above explanation is the way the system is set up for everyone, quite a few, or a few policies. I just know that this is the way I've heard that it works for some. So, please, don't take what I've written here as the Gospel truth.

:cool:

Quote:

Originally Posted by IamJenn (Post 1192698)

Hi all....

Hey btw just throwing it out there.....I do work full time for the government but I don't know how much longer I can work. Each day gets harder and harder to manage, do y'all think I should go down the SSDI route & if so where or how do I start . I feel so dumb for asking but I know the clock is ticking and I don't have much time to continue working in my field full time. Any advice is truly appreciated!

Thank you all I have no idea what I would do without you all!!!!!!! ❤️❤️❤️❤️❤️❤️

if you feel that CRPS is going to limit your ability to work in any way, you can begin an application for SSDI online. Making an appointment with your SS office is highly recommended. They can help you go over some of the questions if you don't quite understand what they actually want to know. Do it as soon as you can. I filled mine out in October of 2014 and am still on the waiting list for an ALJ. I do live in Detroit though with a high number of fraudulent attempts at trying to qualify for disability. Do not get discouraged if you get denied on the initial filing. There are plenty of us here that can help you understand the process. Lit Love spends most of her time helping others with SSI and SSDI questions on that part of NT.

I hope you are feeling a little more energetic today.

Quote:

Originally Posted by IamJenn (Post 1192698)

Oh, and I forgot to add.... When I went to the E.R. they put me on an IV and monitored my heart to make sure that I wasn't having a panic attack or worse. They also made sure that I had the proper pain medication on board, since I was also having a full blown CRPS body attack at the same time. They then set me up for a series of tests through my then Pain Management doctor. That way they could rule out all of the possibilities of what may have been going on, which my pain management doctor was concerned about after the ER visit. Everything came back saying... This is CRPS just wearing me out like an old worn out rug!

Quote:

Originally Posted by -Spike- (Post 1192702)

Hi Spike,

I'm not sure I understand. Do you mean I have to seek out a disability insurance company or that it should already be apart of my company? As for working for the government we have nothing like that so if I went out on FMLA leave I won't be paid unless I have saved up my annual and sick leave days. I know in the private sector, most companies have insurance to help you out while you're out on leave I think they give you like 30 or 40% of your actual earnings ect. But can you explain more about what you said please, maybe I'm just not getting it. Sorry.