Searching for Answers; MS/Fibro or Other?
 

Thankyou all for welcoming me and having me here.


I'm 29 years of age, originally from Australia and now living in London with my husband.

I joined this community because in my rampant google searches, this excellent resource kept popping up with key words I had typed.

It was time to stop self-diagnosing and instead, connect, share, learn and grow with others.

I'm scared right now, as many of us are, because things are happening in my body that haven't happened before.

I await a Neurological appointment in late February through the NHS to calm my nerves and get tests done.

My gp seems a little clueless. He's very 'by the book' and a bit grey area on my symptoms. He wants to rule out MS but I can see he also has no idea what's going on!

Anyway! I talked enough for an intro. It's lovely to be here and please feel free to connect with me and chat.

LondonLady:o

Hi LondonLady

Welcome to NT - I hope that you find the community as knowledgeable and supportive as I have.

As far as possible MS is concerned, this forum is worth a look; http://neurotalk.psychcentral.com/forum17.html - lots of people make constructive contributions there

We are not any different
 

There is quite a lot of self diagnosing going on here also. So, take all advise with a grain of salt and try to double-check anything you want to act on with your doctor. Fight the panic that is always first symptom. Good Luck, Ken in Texas.

Hi LondonLady, you mention MS or Fibro or ??

From a life of seeing my sister deal or not deal with MS and seeing a nutritionist with her in the beginning, Sugar and Carbs are major negatives for our bodies. My sister didn't pay enough attention to these two negatives in her life. She took mega drugs over the years and they did NOT slow down the progression. Vit D is critical too with this MS. Keeping a lower stress life doesn't hurt. Thinking back, my sister had so much stress in her life from many angles. Get into meditation.

On the Fibro, I was given that dx in 1999 after seeking thyroid support for 10 yrs...one endo told me "you thyroid is fine, but you have Fibro".....never really believed it. I did not take any of the drugs he wanted me to, but left and started my own search. Finally got on NDT (natural desiccated thyroid) in 2002 and truly BELIEVE the thyroid was the culprit in the so called FM issue. Adrenals and hormones are important too. You are young so don't know about all this for you, but so much we don't know. At whatever age. Personally, I was pretty well until after menopause, depression set in big time and found it was thyroid after 10 struggling years.

Hope you can get to your roots of what you deal with. C

Thankyou kiwi33 and zkrp01! Noted re MS forum and notes re stress reduction for panicking :)

Warm regards and thanks to you both.

Is there a place where I would be able to post my symptoms ? To have input from the community here?

I probably shouldn't post in MS as I don't know that I have it. It's just a thing the Dr is ruling out.

With gratitude

Hi there. Welcome to NeuroTalk:

I watched your YouTube and thought about Parkinson's.
If you search "tremor in ring finger" you'll find many sites with Parkinson's patients discussing finger tremors.

Of course, yours may be a benign thing... try some magnesium supplements (anything except oxide) and see if that helps.
3oz of unsalted almonds, have 270mg of magnesium, which is an easy way to get your intake normalized. Up to 70% of adults can not be up to the RDA for magnesium, and when that happens, there are twitches and other muscular tensions that surface.

Thank you Mrs D for replying :hug: .

Since the time I posted that, the tremor has reduced significantly. I don't know whether that is from remedying a very low Vitamin D level (6ng.ml) or from taking Vit B and Magnesium.

I was told by one Dr i have RSI, another said Essential Tremor. However now, it's hardly noticeable. I'm at a loss. I will look into the Parkinson forum though, and see what people think.

Thanks so much

Hello and welcome to NeuroTalk! :)

I'm sorry you need to wait a while yet to see the Doctor but late February isn't that far away now. Try not to worry too much. Easier said than done I know.

Regarding your finger tremor ... there is a

Movement Disorders Forum
Including essential tremor, dystonia and Restless Leg Syndrome (RLS)

If you want to run searches in Parkinson's Forum, then here is the link for that as well
Parkinson's Disease Forum

Repetitive Strain Injury subforum

Since your interventions are working, I'd keep on them for a while. See if you can get the tremor to stop.

If it does stop, then you can stop the supplements and see if it returns. I would think that would be a clue that your tremor was a benign thing, and a sign to fix some nutrients you were low in.

Thanks very much Lara and mrsD!

Right now I'm taking 10,000IU Vitamin D3 and combined calcium and magnesium. Also a Vitamin B Complex (includes B12).

I had a Dr write back to me from the states, she watched the YouTube clip you saw and said I need to correct my B12 level. I told her it was 'normal' as GP2 reported.

However, the Dr from the States told me what 'normal' is not a true measure of health and optimum range. She said all sorts of things can go wrong when it's off.

At the very least, I am learning a lot right now haha. As I'm sure you guys are too right! :)

I will keep on the vitamins until I see the neuro, and try to remain positive until I get a diagnosis.

Lara and mrsD - what has been your experience with neuro issues?

caroline - if okay I would love to PM you to talk more about your experience with Fibro. As for Meditation, funnily enough I am now a practitioner! I have always been super sensitive and stress has always had an affect on me, so this is my lifestyle choice to be at peace with my natural predisposition :)

Thanks again, so much appreciated :p