Technical Question re: receptor levels
 

Hi everyone,

I recently has my Myasthenia blood panel drawn again (its been two years?) and my results came back positive, which I expected. I've not been doing well with walking and I'm concerned my MG is progressively getting worse.

My question is this:

My doctor told me my levels are "elevated" but I'm not sure -how- elevated?
I cannot find a ref. range anywhere except for what constitutes as a "Positive" result. I know everyone is different but I am really curious where I stand (or, more realistically, where I fall. Hah! Get it?! A bad MG joke! :wink: )

Results are:

Binding Receptor Ab: 253.45 h nmol/L
Blocking Receptor Ab: 52 H % of inhibition
Modulating Receptor Ab: 92%

striated muscle always comes back negative

Does anyone else with generalized MG have similar results?

Thank you in advance to all who respond!

-Lin

Lin, Haha! Funny, yet not.

What lab did they send your tests to? Do you have a copy of them? Every lab has a slightly different test range.

http://emedicine.medscape.com/article/1171206-workup

Your numbers are really high. And with a modulating that high, I'm surprised they are talking about your thymus. Have you had a thymectomy? Or a CT of the thymus?

What drugs are you on right now?

I'm sorry you're doing worse. The numbers don't necessarily reflect that, however, the appear to in your case!

Annie