NeuroTalk Support Groups - looking for other porphs

NeuroTalk Support Groups (https://www.neurotalk.org/)

- General Health Conditions & Rare Disorders (https://www.neurotalk.org/general-health-conditions-and-rare-disorders/)

- - looking for other porphs (https://www.neurotalk.org/general-health-conditions-and-rare-disorders/2321-looking-porphs.html)

purple pal

10-01-2006 10:13 AM

looking for other porphs

I'm looking for any other porphs out there. I'm open to any of the sub-types since I have one of the porphyrias that affects both the nervous system and the skin.

purple pal....:)

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