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-   -   Newbie :) currently undiagnosed (suspected CMT) (https://www.neurotalk.org/new-member-introductions/232765-newbie-currently-undiagnosed-suspected-cmt.html)

Tamgerine 02-20-2016 05:18 AM

Newbie :) currently undiagnosed (suspected CMT)
 
Hi everyone!

I discovered both the Psych Central and Neuro Talk forums today :)

I'm Tam, I'm 34 and currently in hospital. I started noticing tingling in my hands and feet, and some weakness, about 8 weeks ago. In the last two weeks, the weakness (especially on my left side) became rapidly worse. I can barely walk, and the nerve pain is quite bad. Starting Lyrica tonight.

At this point in time, the neuro thinks that I might have Charcot-Marie-Tooth Disease. Apparently I have the high arches and clawed toes that can be a sign of this disease. I'm in the process of having many tests, the next one is the electro-myography.

I also have Bipolar Disorder Type 1, hence joining the other forum too :)

bestbob 02-20-2016 06:39 PM

Hello
 
Hi Tam, So sorry this happened, and it sounds like it all took place over the period of 8 weeks. Hang in there, and even though I am new to this forum, from what I have read and seen there are a lot of people here with a lot of knowledge, compassion, and support.

Bob

Lara 02-20-2016 07:35 PM

Hello Tam,

Welcome to NeuroTalk. :)

I just wanted to let you know that there is a Bipolar Forum here as well. Posting link below.

Bipolar Forum

Also wanted to let you about the Forum Search Feature. It's handy to find older threads and posts. However, in the case of CMT you would need to use the whole words as the search function will only allow words of more than 4 letters. e.g. Charcot Marie Tooth or even Charcot will bring up posts.

Most will be in the Peripheral Neuropathy Forum.

Forum Search Feature

Peripheral Neuropathy Forum

I sure hope you get some answers soon. I hope the hosptial stay is going alright for you too.

take care there.

Tamgerine 02-20-2016 10:19 PM

Thank you all :)

Thanks for the search tips, Lara :)

kiwi33 02-21-2016 07:44 AM

Tamgerine, I don't live with Charcot-Marie-Tooth Disease but I think that some NeuroTalk members do - they will be able to offer you far more direct support than I can.

It comes in many forms, most of which have a strong genetic component.

The information here might help you when talking with your health care team; http://www.ninds.nih.gov/disorders/c...arie_tooth.htm.


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