Still in limbo
 

Hello everyone, I have neurological symptoms all over my body. From head to toe there isn't a part of me that at some time or all the time doesn't hurt, twitch or cramp. Been to so many different drs all focusing on one symptom, and not what is causing everything. Worst part and good part is that all test, mri's blood test, eeg emg all normal, I am the healthiest sick person. I have horrible fatigue and night sweats, exaggerated startle reflex my eyes don't open right, and I have difficulty walking, which has progressively worsened first involving one leg than the other. all of these including the gait problems come and go and of course neuro exam was normal too.

Very frustrating, I am right now in remission of sorts, walking is almost completely normal again, but over the past ten years I have noticed with each new flare up symptoms increase and spread. headaches weekly, bowel and urinary issues, but as of now they haven't a clue, and neither are they looking, until the next issue, my hands twitch too or jerk and I drop things frequently, I lose balance a lot and have tinnitus and pulsitis tinnitus too, my eyes don't always open together, I have vocal chord atrophy and yet have been told it's not neurological, I question myself sometimes, but then my hands jerk and I know it's neurological but until they can "see" something they don't believe me...sigh....:confused:

Hi, have you had "thorough" thyroid work. Thyroid controls so much and when it's not working properly, good grief. I have a long thread here on thyroid primarily HypoT.

Hi purplelover1

I agree that getting your thyroid gland function checked out is worth considering.

The thyroid gland makes a hormone called thyroxine which comes in two forms; T4 (relatively inactive) and T3 (relatively active). T4 is converted into T3 in other tissues, notably the liver. Thyroxine production is controlled by a hormone called TSH (made by the pituitary gland) which is in turn controlled by a hormone called TRH, made by the hypothalamus.

If you want to get your thyroid gland function checked out then I suggest that you get your doctor to arrange for measurements of your blood levels of T3, T4, TSH and maybe TRH.

If anything of concern turns up then a referral to a specialist clinical endocrinologist should help. S/he will be able to review the measurements with you, maybe suggest further investigations and then discuss treatment options with you.

Purplelover1,

Hello and Welcome to Neurotalk Support Groups :Wave-Hello:

You will find this a great place for sharing and support. I am sorry to see you have had so much difficulty finding answers. That is indeed frustrating.

It's good that you are doing a little better right now. If your thyroid checks out ok and you become symptomatic again you might consider going to one of the big university affiliated medical centers if you haven't done this already. I have received excellent care for a complicated nerve injury that was difficult to sort out in Houston at Baylor College of Medicine and at Methodist. UT Southwestern in Dallas is also very good.

You will find Search and FAQ features at the top of the forum to help in looking for specific topics and for answers to many common forum usage questions.

I hope you find relief and answers soon, :hug: