Ocrelizumab
 

http://acceleratedcure.org/sites/def...3.1.16.pdf.pdf

Sounds promising

Yet another miracle drug being rolled out. Maybe this one will be better than the others!

Ocrelizumab is a humanised monoclonal antibody which blocks the action of a protein called CD20, found on mature B cells. Because of this it is immunosuppressive.

Phase 3 clinical trials of it in the context of MS look very encouraging. It is currently under consideration by the FDA for regulatory approval. There is more about this here; https://www.mssociety.org.uk/ms-rese...ne/ocrelizumab.

Actually hasn't it been fast-tracked for speedier FDA approval?

Yes, it is on the "Breakthrough Therapy Designation" list.

Hearing good things about this stuff. I hope they find it works for SPMS also.
Wouldn't that be nice?

Today read another promising thing about this, will also ask MS neurosuheon on May 13 John Hopkins doctor, for what that's worth.

As always, holding my breath, hoping.

Made it into the Ocrelizumab study
 

Feeling anxious but blessed as my Neuro said I was going to have to switch medicines anyway. Jan1 I started a 100% work from .home job allowing me to work around doctors & tests. I am so happy to not be traveling alone for work anymore. After a few incidents on the road it just wasn't safe anymore. My first infusion is tomorrow so I am a bit anxious. I'll read through my things I signed to see if I am allowed to share my thoughts on it the next few years. If so, I will. Have a great day to all- hopefully one that is pain free as possible.

1week in.....
 

I got a little light headed in the middle when I got up real fast (real fast is a relative term for me). But it was gone before the treatment was over. I didn't experience even the mild side effects. This alone was a blessing over the "flu like" side effects multiple times a week with Rebif. Next week I get the second half of the first dose. My fingers remain crossed.

Sally, nice to see/hear from you :)
Hope you are doing ok :hug:
Linda

This thread was started by Sally last year (3/2016). I saw it and thought she had posted it recently, too! I haven't heard from her but hope she's doing ok.

Folks are still talking about the drug Ocrelizumab, though. Hopefully it will be the magic bullet for someone.

Doggone it ! I did not pay attention to dates, was just excited to see Sally's pic. I so hope Sally is ok..it's been a long time since she posted :(
Does anyone know how Sally is ?
Linda

I just happened to see this. Sally hasn't been doing so well. She's in a nursing home and has been battling pneumonia. In fact I haven't heard from her in a while and am concerned. I'll let her know you were wondering about her.

Please let her know we were asking about her and miss her. I do hope she can recover from this bout with pneumonia. Thanks for the update, agate. :)

Yes please let her know we send our love and healing thoughts....and that she is loved:hug:

My cousin has PPMS and her neuro has already planned to have her try it...I really hope it works for her. I still want to sit back and wait.. It does have a small incidence of cancers in some patients. I am a DEA daughter and have already survived clear cell carcinoma, so I think I would rather just go without treatment than add to the risk of cancer.

I am already having problems dealing with Rebif after only 1 injection...I am about ready to give up and do without MS meds if my insurance won't let me take Tec again.

I have a neuro appt on 5/26 and plan to request this med. I'm tired of waiting. I need to be on something.

Agate - please let Sally know that I say hello too! I hope she is well - pass on well wishes and good thoughts.