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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Upcoming meeting UK (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/233926-upcoming-meeting-uk.html)

Kevscar 03-19-2016 06:29 AM

Upcoming meeting UK
 
The next APPG meeting will be at the end of April, I should have the exact date by next week, meanwhile we need to gather some information for that and 2 other possible meeting so please respond.
Have you contacted your MP whether they replied or not please put 1 your name their name.
Have you done anything to raise awareness nationally put 2 your name what you have done.
Have you done anything to raise awarenss locally 3
Do you have a child that suffers from CRPS and is willing to tell their story put 4
Are you a sufferer with a child who is willing to say what it's like to live with a parent suffering from CRPS put 5
Do you want to speak about something put 6 and what you want to talk about.
Are you on your own and not working do your benefits excluding mobility come to less than £8562 Put 7

-Spike- 03-19-2016 08:08 AM

Quote:

Originally Posted by Kevscar (Post 1205032)
The next APPG meeting will be at the end of April, I should have the exact date by next week, meanwhile we need to gather some information for that and 2 other possible meeting so please respond.
Have you contacted your MP whether they replied or not please put 1 your name their name.
Have you done anything to raise awareness nationally put 2 your name what you have done.
Have you done anything to raise awarenss locally 3
Do you have a child that suffers from CRPS and is willing to tell their story put 4
Are you a sufferer with a child who is willing to say what it's like to live with a parent suffering from CRPS put 5
Do you want to speak about something put 6 and what you want to talk about.
Are you on your own and not working do your benefits excluding mobility come to less than £8562 Put 7

Hey Kev,

I'm curious. Are there a lot of British CRPS patients here at this site? I think it would be really great if there were a lot here. This site deserves that kind of recognition. How many Brits are on here? Do you know? From what I can tell, most are Americans a couple Canadians, and I don't know about the British numbers.

Kevscar 03-19-2016 09:25 AM

There are a few no idea how many


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