Question for those with experience...
 

I suffer from a chronic illness which has evaded diagnosis for 14 years. At one time a neurosurgeon suspected that I had MS, but that was later countered by an MS specialist who felt the clinical finding weren't conclusive.

My illness began (I think) as an infection in my colon. For 2-3 years my only real symptoms were chronic pain and the LLQ of my abdomen. Then I suddenly was set-upon by a whole new and very complex set of symptoms. These were accompanied by intermittent bouts of very acute sickness (vomiting, diarrhea, neurological changes, and EXTREME pain in my lower RIGHT abdomen. These attacks would last from 3 days to 2 weeks, and I would also develop hyper-sensitivity of all physical senses. The only comfort I could find would come from isolating myself in a dark room as much as possible. Does this sound anything like what results from MS?

Thank you in advance,
Idealist

That was not my experience with MS but it's different for everyone.

I believe my MS was initially activated by my bout with Mono when I was 19. After that episode, which took me a good 6 months to recover from, the mild almost invisible symptoms began. 26 years later at the age of 45 I was officially dx.

Have you had a lumbar puncture (spinal tap)? It's not necessarily mandatory for dx but some doctors require them.

Are you seeing a Neuro that specializes in MS?

Usually the McDonald Criteria is used for diagnosis. Here is a copy of it:

http://www.nationalmssociety.org/Nat...osis-of-MS.pdf

What you're describing doesn't sound like MS but only a doctor can verify and give you a diagnosis.

hi, i second what kitty said.
have you had a CT scan of your abdomen? that might show something.

it sounds like you haven't found a dr who takes you seriously. your sx's sure sound like something is wrong. a real puzzle. and sometimes don't like to search for something if it's not right in front of their face.

don't give up. keep searching for answers.
i hope you will do better. ps...is there anything in your environment that could be causing problems? have you seen a GI dr?