Saw the neuro today
 

....and am scared to death. :Sob:

he thinks maybe Hashimotos Encephalitis.

Anyone have any insight or information.

Anyway he sent me to a special rheumy.

But I cannot go on feeling like this anymore. :Noooo:

oh God please help me.

I am sorry I am beside myself right now.

Hi Shelley :hug:
Im sorry you are having a real tough time at the moment, I cant help with the H E, but know Im thinking of you and sending positive thoughts:circlelove: . I know how stressful waiting and not knowing, I went through it being diagnosed with myasthenia gravis, they thought it was ms.
take care :hug:

Shelley, I'm so sorry you are having so much distress right now. The good thing is that getting a definite diagnosis is the first step toward getting treatment! Try to keep positive through it all. I know that's easy for me to say, and dificult to do, but I know from experience that it does help.
Hugs,

Please Shelly!
 

Calm down. While this is a terrible disease, you at least have a name for it now and it is treatable with medication. And can usually be controlled. Here is an article from Mary Shoman. She is one of the best http://thyroid.about.com/cs/hashimot...phalopathy.htm

And then there is this young lady's site : http://www.thyroid-info.com/helps.htm

Maybe you will get some answers to your questions there. I don't have anything more at this date. Try to stay calm, it CAN be treated.

Billye

Thanks everyone. I am sorry I just cant stop crying right now.

Oh, Honey...
 

Shelley, You can have my...
 

'Been there, Got That' Tee shirt if ya want it!
I just got promoted from hypo-thyroid to Hashi's this spring....I've always 'wondered' if the thyroid wasn't playing games with other stuff.
I'm going to forward some sites I dug up while trying to figger things out myself. Thyroid and other 'endocrine' stuff, well, it runs all over the map...and mimics soo many neuro issues it's down right scary that we ever get diagnosed with anything at all!
Please don't panic untill all, and I mean ALL the tests are in! Promise? - j

Shellley
 

It's so hard to think,oh boy here we go again and not to mention,
a new Dr. I know why your crying,fear of the unknown. That's ok
you have a right to that fear. So if you need to go ahead and cry.
Soon enough you will know more about it,understand more and
before long they will slow down. But until then go ahead and cry,
we will be here if you need us,just like you aways have been for us.
:hug: :hug: :hug: to a sweet and kind person. Sorry friend, Sue

How are you doing, Shelley?
 

the stress is so hard to deal with, I know.

Do you have any techniques to share...?

I can't get started today because the task I'm faced with seems impossible to have any success with... yet I have to do it...

so if you have a way of minimizing the effect of stress on you, boy would I love it if you shared.

(((((((((((Shelley)))))))))))

Stress, its like a candy to me. I dont like the health stress I have been dealing with but I so used to love my job stress. I have a stressful job where you have to live on the edge and always be anticiapting. Its was great but I think it contributed to how I am now which is sick.

How do I deal? I break things into individual pieces so I cannot see the overwhelming whole and get things done that way I guess. But I am certainly not as good at it as I was before.

Thanks for the hugs