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-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   Dr Deborah Zelinsky in Chicago - Mind Eye (Ghost in my Brain) (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/236023-dr-deborah-zelinsky-chicago-mind-eye-ghost-brain.html)

Mokey 05-18-2016 08:18 PM

Dr Deborah Zelinsky in Chicago - Mind Eye (Ghost in my Brain)
 
Hi,
I have recently started going through the book 'A Ghost in my brain' by Clark Elliot (a few posts from last year when it came out, I think). I have listened to him being interviewed and have started ploughing through the book. SO many things are what I have and do experience on a daily basis.

I am so grateful he wrote that book - he describes what I find to be difficult to describe to people. Worth checking out - google to hear a radio interview.

He used a neuro-optometrist in the Chicago area - Dr. Zelinsky at the Mind-Eye Connection (or something like that). As others have written here, her tests seem to be much more advanced than other neuro-optometrists or neuro opthamologists. She seems to get the sensory interconnections - the auditory, visual, balance, etc. issues that have caused me and many others daily suffering.

I am going to try to go to see her and wanted to check to see if anyone else has tried her. The book author also consulted with a neuro-psychologist in the area - Donalee Markus - I am not planning to see her as it is too expensive and I want to see the results of working with Dr Zelinksy.

I have been wearing prisms in my three glasses (reading, computer and distance) for 3.5 years. Prisms have been getting reduced over time, which shows some level of healing. But she has a unique take on the prisms and I am curious (and desperate!!!!).

If anyone has any experience, I would love to hear from you.

For those in the USA, she does take some medicare or insurance things, which could help with payments. It doesn't apply to me but I would pay anything for improvement. Don't want to be scammed though!

I really recommend the book - and I really recommend that every health care person I (and all of you!) have seen for mtbi / concussion read it. He was like me (and millions of others) - dismissed by so many medical practitioners - including neurologists - no one really gets this injury, which is horrific. I call it the injury that keeps on giving!

healing thoughts to you all.
M

todayistomorrow 05-19-2016 01:22 PM

Yes, I am from Chicago and went to her clinic 1year after my TBI. I saw Dr. Wright who I liked a lot. They diagnosed me and gave me tinted glasses to start. It made a HUGE a difference to me. It helped headaches and helped me work on computer/read without eye strain.

It is definitely costly as are follow up visits. I didn't improvre really after a year of using the glasses but I still wear them for computer stuff. Probably mostly due to outside stressors.

JBuckl 06-09-2016 03:00 PM

Hi Mokey,

I also just read the book. When are you going to see Dr. Zelinsky?

Storms 04-11-2018 10:14 AM

Visit to Zelinsky?
 
Hello! I came across your post while looking into seeing Dr. Zelinsky. Wondering if you went, and if so how it went. Hope you are recovered by now. Thanks!

Quote:

Originally Posted by Mokey (Post 1211652)
Hi,
I have recently started going through the book 'A Ghost in my brain' by Clark Elliot (a few posts from last year when it came out, I think). I have listened to him being interviewed and have started ploughing through the book. SO many things are what I have and do experience on a daily basis.

I am so grateful he wrote that book - he describes what I find to be difficult to describe to people. Worth checking out - google to hear a radio interview.

He used a neuro-optometrist in the Chicago area - Dr. Zelinsky at the Mind-Eye Connection (or something like that). As others have written here, her tests seem to be much more advanced than other neuro-optometrists or neuro opthamologists. She seems to get the sensory interconnections - the auditory, visual, balance, etc. issues that have caused me and many others daily suffering.

I am going to try to go to see her and wanted to check to see if anyone else has tried her. The book author also consulted with a neuro-psychologist in the area - Donalee Markus - I am not planning to see her as it is too expensive and I want to see the results of working with Dr Zelinksy.

I have been wearing prisms in my three glasses (reading, computer and distance) for 3.5 years. Prisms have been getting reduced over time, which shows some level of healing. But she has a unique take on the prisms and I am curious (and desperate!!!!).

If anyone has any experience, I would love to hear from you.

For those in the USA, she does take some medicare or insurance things, which could help with payments. It doesn't apply to me but I would pay anything for improvement. Don't want to be scammed though!

I really recommend the book - and I really recommend that every health care person I (and all of you!) have seen for mtbi / concussion read it. He was like me (and millions of others) - dismissed by so many medical practitioners - including neurologists - no one really gets this injury, which is horrific. I call it the injury that keeps on giving!

healing thoughts to you all.
M


todayistomorrow 04-11-2018 12:27 PM

Quote:

Originally Posted by Storms (Post 1261452)
Hello! I came across your post while looking into seeing Dr. Zelinsky. Wondering if you went, and if so how it went. Hope you are recovered by now. Thanks!

Dr. Zelinsky is very good. I didn't respond to vision therapy so went back to her to get new lenses. My convergence had regressed so trying something new with my lenses which I just received a few days ago. Without my glasses, I can't read anything or do any work on the computer.

russiarulez 04-12-2018 12:43 AM

Quote:

Originally Posted by todayistomorrow (Post 1211751)
Yes, I am from Chicago and went to her clinic 1year after my TBI. I saw Dr. Wright who I liked a lot. They diagnosed me and gave me tinted glasses to start. It made a HUGE a difference to me. It helped headaches and helped me work on computer/read without eye strain.

What type of tint for the glasses that you use? Is it FL-41?

One of my main issues is inability to look at computer screens and I've been trying to find anything that helps only if a little.

todayistomorrow 04-12-2018 07:32 PM

Quote:

Originally Posted by russiarulez (Post 1261477)
What type of tint for the glasses that you use? Is it FL-41?

One of my main issues is inability to look at computer screens and I've been trying to find anything that helps only if a little.

It was a blue tint. In my recent test, she determined tint wasn’t helping and instead of using prism to draw eyes inward, was going to make it to bend the light outward. I don’t get the science of it but it really helps.

ConcussedButHopeful 04-13-2018 01:28 PM

I just saw Dr. Zelinsky and have not received my prescription from her yet. After I do, I will post my results here. Also FYI for anyone who is more skeptical, I believe there is a double blind clinical trial happening currently to test her "method."

johnsmith4000 04-13-2018 07:11 PM

I have blue blocking sunglasses (orange). Are these the same thing?

chasann 04-13-2018 10:03 PM

Blogtalk
 
Understanding How the Eyes Are Affected After a Brain Injury w/ Dr. Zelinsky 2/16 by Faces of TBI | Health Podcasts

I liked the analogy of an orchestra . . .
I was tested by an eye specialist, nothing wrong with my eye sight because I could read the letters on the chart in front of me.
A neuropsychologist advised a visit to behavioural optometrist after listening to the list of impairments I suffered after my fall, none of which were present prior.
Prescribed glasses with prisms and coloured lens made a big difference.

You might get frustrated with the interruptions listening to this podcast but persevere . . . .maybe my tolerance levels aren't what they used to be!


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