NeuroTalk Support Groups - Question of symptoms... PCS

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Question of symptoms... PCS

This is cross-posted from the 'Headache' Forum. May be something to consider...

Just wondering if anyone suffering with this type of headache also has orthostatic headaches as a feature of pain. An orthostatic headache is an increase in headache pain when you stand up. Pain levels may also decrease or go completely away when you lay down. If you have this symptom as a feature to your pain, you should consider that you may have Spontaneous Intracranial Hypotension. I'll post a link to an article.

I ask because SIH is a type of headache brought on by a CSF leak. CSF leak headache characteristics are very similar to PCS, but with orthostatic feature (although not always...). One remarkable similarity is that NO medication makes an orthostatic headache better or go away. My husband has suffered with orthostatic headache from a lumbar puncture 10 months ago. We went through all kinds of tests, treatments, etc. He's still suffering while awaiting the next 'go ahead' for treatment by his neuro team. It sucks!

Here are some links to articles:

http://www.medscape.com/viewarticle/466089_print

http://www.treatment-options.com/art...icle&KeyWords=

http://www.medscape.com/viewarticle/405618_print

Thought I'd throw it out there, because it IS treatable and it's something that doctors may not suspect right away.

Good luck!
Laura
Weary Wife of a Leaky Husband

THis is the interesting thread Nikko

There is another neurological support forum where I post regularly as they have a board specific to csf leaks. If anyone suspects that their trauma caused a leak, it would be a good place to get information.

There's one person who has a csf leak following a MVA who posts there. Essentially there are a wide variety of reasons/causes for csf leaks and an equally wide variety of people who suffer these who post there.

I post there under the same 'name' and here's the link:
http://brain.hastypastry.net/forums/...play.php?f=126

If you have any problems with the link, GOOGLE "Brain Talk Communities". Regardless, they have a lot of good information for all kinds of neurological issues.

Hope this helps!

Laura