I'm back!
 

Here we go again !
Spasms are unrelenting.
Just an update , I haven't been here in a awhile .
Last year I found a new neuro , I had spasms so bad I had to go to ER.
My pcp said "you have MS.. don't let them push you around... Fight for yourself , get a spinal tap if you want one" neuro examined me.. Said it was Dystonia.

No new test were ordered, said to see him in six months..same old same old.
Went back 9 months later, he kept re scheduling appt. the. He lost my Medicare
reports. Saw him finally, he made me walk backwards , said I looked fine and to see him in six months.. I never went back.

Found a new pcp... Moved back to where we lived before ... Doctor said I have Dystonia with weakness in my arms and legs reflexes in my left leg was insane.
Said in his opinion it was MS... Gave me back often and lyrica, I follow up in 2 weeks, he will book an MRI and find me a neuro.

Baclofen not working, just makes me worse .

I'm okay with all this , I've made peace with it, I just want answers

Welcome back! How's Miss Haylee doing?

I hate it that you're still seeking answers. Just proves how hard it is to get a firm diagnosis. :rolleyes:

I hope your new doctor can help you. :hug:

Thanks for asking, she has severe anxiety/depression.
We've moved back to the city where all her friends are, and what's familiar to her..
Sadly her friends have moved on, but we're getting her the help she needs.
She is very happy that she's back though.

My middle son is in the military now, he's at a the Royal Military College in Kingston Ont Canada, he's an officer cadet. He had one more year then he graduates . My oldest so and his fiancé moved in with us. So all in all its been good.

I'm still working at Sephora, I love it.
I told them this week of my health issues, they've been amazing, but I'm required to be on my feet the whole time.. We'll see....

How have you been?

I hope the new surroundings help Haylee.

I'm still plugging along. I've progressed to SPMS but that's no surprise. :rolleyes:

I'm a Grandma now!! Twin girls. It's just so much fun. There are pictures somewhere here. I try really hard not to post too many. :o:o Here's the thread I started http://www.neurotalk.org/the-stumble...amma-pics.html.

Thanks, it's a step in the right direction for her, she's 16 now... Never wanted help for her mental health issues. But now she wants the help, so it's good.

Sorry about your progression, that makes me sad.
Your granddaughters are gorgeous ! Congrats !