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-   -   Vitamin D3 (https://www.neurotalk.org/myasthenia-gravis/238128-vitamin-d3.html)

patrick123 07-20-2016 09:11 AM

Vitamin D3
 
Hi fellow MGers, Since my diagnosis, 5/14, I have read extensively about Vitamin D3 and its benefits to those suffering from autoimmune diseases... I am convinced that it has a very important role to play in the treatment of AI disease as an adjunct to standard treatments. Currently taking 6K iu/d. Are most taking Vit. D3? Interested to know... Best Wishes, patrick123

Snoel 07-20-2016 05:11 PM

Yes I've been since I was diagnosed in '07 I'm taking an average of 40.000ui a week and it has helped me a lot when I was in my first stage of Myasthenia Ocular, in spring of April 2015 I had a CRISIS/FLARE and was hospitalized for 8 weeks and since have to do Plasmaphereris weekly plus Imuran and Mestinon and other meds....I'm still taking vitamin D3 which I think is still good for me at this time.

patrick123 07-20-2016 07:04 PM

Quote:

Originally Posted by Snoel (Post 1217707)
Yes I've been since I was diagnosed in '07 I'm taking an average of 40.000ui a week and it has helped me a lot when I was in my first stage of Myasthenia Ocular, in spring of April 2015 I had a CRISIS/FLARE and was hospitalized for 8 weeks and since have to do Plasmaphereris weekly plus Imuran and Mestinon and other meds....I'm still taking vitamin D3 which I think is still good for me at this time.

Have read many very good things about D3, not so good about D2... Do you know what you Vit D serum level is? Are you taking D3? Thanks for responding... patrick

Mw40love 07-20-2016 08:58 PM

I am taking 5000 units but because I was quite low.

mimc 07-20-2016 09:26 PM

I take vit D3 3000iu a day. My doctors check my blood level and adjust my dosage accordingly.

limpy 07-20-2016 09:49 PM

I started out taking 50,000 ICU per week of prescription vitamin d about a year ago for a deficiency. I'm currently taking it every other week as my levels have improved.

patrick123 07-21-2016 02:53 AM

Quote:

Originally Posted by limpy (Post 1217736)
I started out taking 50,000 ICU per week of prescription vitamin d about a year ago for a deficiency. I'm currently taking it every other week as my levels have improved.

Sounds like you may be taking D2... D2 did not raise my serum level much at all, on a regimen similar to yours, but D3 did, very substantially...

patrick123 07-21-2016 03:08 AM

Grassroots Health...
 
The link below is a very good source of Vit. D info. Many distinguished, and highly regarded researchers, Heaney, Garland, among others. An in depth reading of the material presented is well rewarded. As far as I can tell, all of their recommendations are backed by solid research. ...GrassrootsHealth | Vitamin D Action - GrassrootsHealth | Vitamin D Action

limpy 07-21-2016 07:10 AM

Everyone tells me I should take d3. I took it for months with no increase in serum levels, in fact, they went down. That's why my doctor started me on d2. It worked for me.
Everyone is different in the way they absorb nutrients, etc. if it hadn't worked, I'd be looking for something else to try.

mrsD 07-21-2016 09:35 AM

We have a Vitamin D thread here on our Vitamin forum...

Lots of collected information there.

http://www.neurotalk.org/vitamins-nu...in-videos.html


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