Ms brought me something new
 

I have had severe muscle spasms likely the greater part of my 36 years of life. But I have always been able to control the jerks and tremors just by focusing on them and essentially telling them to knock it off... Well outside my Thumper response to extreme pain when my right leg will simply bounce, to the point of lifting my 240 lb husband off the floor if he tries to hold it down and stop it.

But where I thought my exhaustion yesterday and into this afternoon today was just all the stress catching up to me. I am for the first time experiencing uncontrollable tremors in both my arms. I can hardly hold a glass of water to take a sip and typing this is a real pain in the ****. And earlier I was able to somehow roll my ankle while wearing my AFO. Me thinks the ER Doctor might have been correct in his assessment barely a month ago when I was sick that I was also having flare.

And I just hope that like the chronic pain, these wiggly arms are another thing that I'll just get used to, but right now they are really annoying. Especially when coupled with a desire to sleep for 18 hours out of the day.

:hug: here's hoping it gets better for you soon! :hug:

Hoping that it calms for you soon and it is not going to become a new normal for you. :hug:

starz,

that is awful. if this is still going on in the morning i would try to get an emergency appt with your neuro. whatever is happening, i think, requires a professional eye.

thanks for typing all that. let us know how you are.
wait...are you the person that lives in the small town?
might have to hit the ER. OY.

Yikes!!! It sounds like you need to call your neurologist and also your PCP as it may be thyroid related.

I hope you feel better soon!:hug:

It has calmed down a little, but still there. I just can't hold anything in the left hand, which being a lefty is difficult. But also I have a hard time using my wheelchair now. I think I will have to go to Jacksonville to see the neuro as the soonest I could get my six month follow up was in November. She booked solid up here, but might be able to see me sooner in JAX or Gainesville so a 1-1.5 hour drive :(. And I truly hope this is neurological and not the thyroid... Well unless it's the one that makes you skinny :p, I could stand to lose a few pounds and a shaky arm seems like a fair trade off right now.

But at least my right arm has returned to mostly functional... It won't ever be fully functional for me I don't think, it works mostly as a decorative appendage to make me look even. I have always had the worst coordination with it, can't write with it, lucky if I can open a door with it, and drop things about 50% of the time if holding in the right hand, I just kind of forget to keep a hold of things with it and it just lets go. It really is useless and has been my whole life, though I've had the nerves tested and they're fine, the muscles are fine, it's just the brain that could care less about the right arm. I've even done OT for it when I was a kid and nothing, zero improvement even though there's nothing physically wrong with the arm, and it does move, grasp and everything an arm is supposed to do, it's not paralyzed just doesn't like to play nice. It's even worse than most righties trying to use their left hand.

I mean it won't even behave during the strength test with the neuro.. She'll say to push upward and it takes at least two or three tries for it to push upwards as it tries to go down... Push inward and it tries to go outward... Doesn't matter that I know what she's wanting it to do, it tries to do the opposite every time until I can get it to listen to me, then the strength is just fine and dandy, it just has a mind of its own sometimes :rolleyes:

Well I'm glad it's a little better. I hope it continues to improve for you!

Thanks for the update.

The joys of your doctor being affiliated with UF Health, right? I guess that is a big part of the reason I have not changed my neurologist. I have seen him since 2007 for my migraines in Brunswick. Though, I love the Gainesville campus. I spent almost 2 weeks as inpatient in 1982 as an ortho patient. Starz, you will be in my prayers. :hug:

I'm glad there has been some improvement. I hope this was a start of a trend upward for you.:hug: