idiopathic sfsn
 

Hi friends,

I'm new here. suffer for 2 years from probably idiopathic sfsn. I have parashtesias all over my body, nimbness and pain, but all the tests are O.K. NCV and QST. My neurologist said he suspects SFSN, but can't prove it.
Did you here about it before?
I would like to hear more about Idiopathic sfsn, many your stories. How things started and how long was your way till you were diagnosed. (and sorry for the English mistakes...)
You can send me an e-mail to reut540@gmail.com or answer in the forum - I hope I can know how to find yor responds.

All the best

Rina, I can only suggest that you
 

first check out the 'stickies' at the top of this forum...the one that's several pages long can provide you with LOTS of information about neuropathies. There are over 200 types so, be prepared to be 'boggled' and 'whelmed'. They are also useful to learn the 'vocabulary' about neuropathies, the ways doctors feel it 'shows' how YOU feel.
You also might want to read old posts to get a feeling of what all each of us has gone through in onset, diagnosis and then how we all live with it. That I think will help you get a picture of neuropathies and what comes with it.
There are no 'silly questions!' Each person here has asked their fair share, either here or on other boards.. What makes this place special is that posters can share web sites directly that like to sources or resources that can be useful in understanding what you have, and what to do about it.
- j

I have no idea what Idiopathic sfsn is?????

Melody it's
 

Ideopathic Small Fiber Sensory Neuropathy.
- j

Now how stupid am I????

lol

Not stupid.... just
 

acronym 'impaired'?

Rina, don't worry about your English. It is fine. I don't even speak a second language.

My second language seems
 

to be becoming: 'medical-speak?' Part Latin- part who knows what? It is one scary proposition..... - j

And--
 

--take a look at this site (written in "doctorese", but very comprehensive nevertheless):

http://www.neuro.wustl.edu/neuromusc...tml#idiopathic

"Idiopathic" small-fiber snesory neuropathy is one of the most common presentations, although many neuros now believe that some form of autoimmune response may play a role in those who do not have undetected impaired glucose tolerance:


http://www.thecni.org/reviews/13-2-p07-treihaft.htm

http://www.dcmsonline.org/jax-medici...uropathies.htm

Hey I am a nurse and didn't know what is was.................