seeking options
 

Hello everyone , this is my first intro ,and im hoping to possibly find a better means of treatment for my HORRIBLE disease RSD,diagnosed with cancer in 2006 ,chemo and radiation reeked havoc upon my body,the residual effects resulted in my diagnosis,i am a worse case scenerio,severe pain and symptoms with open sores that willnot heal ( 2 yrs ) this has been going on for ten yrs now,im beyond pain and suffering,im angry,depressed,cant sleep and fed up with Doctors who dont understand this disease ,im sure there are those of you who are suffering just as bad,and just by chance i found this site that im hoping will lead to better information and resources that i can use, im a 61 year old man with a poor quality of life wanting just a fighting chance to help myself, and hopefuly othetrs,i presently go to Harbor UCLA medical center, pain management ,i cannot say anything possitive about their program, any and all input is welcomed ,i cannot be online very often , so please be patient with my replys, Respectfuly Written, Larriva

Hello and Welcome Larriva,

I am sorry to hear that you developed RSD after battling through chemo and radiation. It takes grit and determination to get through all that.

You will find a supportive group of people here and a lot of info about different treatments that those of us on the RSD board have tried. I hope that you find something new to consider. There really are a lot of options to increase your comfort.

You'll find the RSD/CRPS board here. http://www.neurotalk.org/forum21/

Also try the Search feature at the top of the page to help look things up.
Come say hello on the RSD/CRPS board and jump in anytime.

Sending thoughts of healing and comfort, :hug:

Hi Larriva

Welcome to NT. I hope you find some useful information from past members to help manage the RSD/CRPS.

I don't have RSD but deal with a number of other conditions involving pain so you have my empathy.

In regards to treatment options maybe if you could outline briefly what you've already tried (in terms of medications and/or therapy), it would help others to make suggestions.

Also I don't know how you feel about participating in research studies or trialing the off-label use of (an FDA approved) medication. In may 2016 Stanford University was enrolling patients in a study for using Low Dose Naltrexone (LDN) for the treatment of pain in CRPS. Here's a link to the study info:

CRPS Treatment Study | Systems Neuroscience and Pain Lab | Stanford Medicine

All the best for finding some relief.