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-   -   Not sure what to due about LDN (https://www.neurotalk.org/multiple-sclerosis/240576-due-ldn.html)

poochie 10-01-2016 06:46 PM

Not sure what to due about LDN
 
Have been on LDN for 12 yrs. Moved and had too find another compounding pharmacy. Had the RX sent to new pharmacy and the pharmacist said he talked with the old one and he would make it. I am about to go on the 3rd month of the new one and have more muscle spasms, dizziness, fatique. Now not sure if I should go back to the old one and have it shipped or just wait and see what happens. Need some advise, please.

tkrik 10-05-2016 12:02 PM

I am not on LDN and hopefully some who does take LDN will come along with some advice. I do, however, wonder if what the pharmacist is compounding it with is causing you the problems or is not compounding the correct dosage. I know some people have said that at higher dosages they have more symptoms. Maybe you could talk to the pharmacist at where you are currently getting the LDN and see if she/he has some ideas or suggestions as to why you are having more trouble. It could also be that you are having a flare up of symptoms due to moving and/or the nature of MS. Have you talked to your neurologist about this? It may be worthwhile to give him/her a call and discuss your symptoms with them.

I hope you find a resolution to what is happening. Hang in there!:hug:


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