TM or MS... so confused
 

Hi. I am quite confused...as is my neurologist.
I have many autoimmune disorders.
The last week in September i fell...just dropped while walking.
Then had symptoms a few hours later ...found out it was MS hug...because i went to ER..
Thought i was having a heart Attack.
I was already seeing a neurologist for a few weeks for a memory issue.
While in ER my left eye went fuzzy gray...and dull.
It lasted only several minutes.

Since i have fallen 4 times...now using a cane.
Doc has me on Nueronton for pain and hug symptoms.

Had MRIs and Spinal tap.
Have a couple small brain lesions that are unchanged from years ago.
Have area in lower back that did not signal with contrast...
But is a long lesion of my entire lower spinal cord.

My symptoms remain and i am in PT and missing way too much work and life.
So far CSF tests look normal.

Doc thought MS...now says possible Transverse Myelitis...but states it doesnt make sense aince its not active...but all symptoms startes same day i fell.
There are no new lesions.

I have appt with opthamology to check my eye as the graying happened again briefly several days ago.

He said if he cant figure it out he'll refer to Cleveland Clinic.

My question....
Has anyone with TM..had a resurrgence of symptoms without a new flare?

Has there been anything that shocked your body into those symptoms?

Im having bowel and bladder issues..all in the last week though.

I really need some thoughts...i feel like im going crazy.

Hello! Are you in the Cleveland area? I am in the general vicinity, and received a number of different diagnosis's for my issues from a number of different doctors.

Transverse Myelitis was one of the labels they tried to apply, which made no sense to me because of constant progression, with that I asked to see a real doctor and was referred to the Cleveland Clinic's Mellen MS center.

They agreed with my personal diagnosis of PPMS and conducted the proper testing to confirm it.

Good luck!