DBS/Rtary
 

Has anyone had any experience of the combination of DBS and Rytary?

In my pre-DBS life, I had problems with protein that would force me to
lay on the couch for hours in misery waiting for the next pills to kick in.

Now post-DBS, the same problems exist for the most part. I'm not sure
if I can mitigate the several hour delay by simply taking additional pills.

Any advice and/or info would be greatly appreciated -


David

i have the same challenge and since am taking only C/L eat most of my protein in the morning and evening.

in advanced pd where you are manufacturing and storing very little l-dopa and rely almost entirely on exogenous l-dopa, i don't think there is any way to get around the protein issue except to eat less of it per meal during the day or add an agonist(?), i think anything over 7 grams is going to interfere with l-dopa getting absorbed in the small intestine and thru the BBB . there is the 7:1 carbohydrate to protein theory that might help but i haven't tried it. when i knowingly eat too much protein i have to wait 2 hrs and then take my l-dopa. i imagine taking regular C/L would kick start getting l-dopa into your system vs rytary. and if you can tolerate it that would be 200-250mg ?

The 7:1 Diet For Parkinson’s Disease: A Nutritionist’s View | Lori Lieberman & Associates, LLC

DBS/Rytary
 

Thanks for the info, Scott. That makes perfect sense. I just wish
there was an easier answer. I never believed that DBS was a
cure-all, but I was hoping I could have a 'normal' meal/lunch
occasionally. Which begs the question, why is it so many DBS
recipients put on weight, whereas people like me struggle to stay
at pre-DBS levels?


David

Hi David,
I was told DBSers tend to gain wt due to the sudden absence of dyskinesia following surgery which is well known for its calorie burning ability!
My guess as well as that is that we start pigging out on foods which previously gave us a worse off time.