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-   -   newly diagnosed with partial epilepsy (https://www.neurotalk.org/epilepsy/243418-newly-diagnosed-partial-epilepsy.html)

credo 12-27-2016 06:25 PM

newly diagnosed with partial epilepsy
 
From tbi that occurred 50 years ago. I am stunned to say the least. :shocked:

pogo 12-27-2016 07:26 PM

Quote:

Originally Posted by credo (Post 1232212)
From tbi that occurred 50 years ago. I am stunned to say the least. :shocked:

50 years is a very long silent period. Lots of seizures are not recognized as seizures and can go on for a long time before a more obvious/notable seizure happens and one is diagnosed. Lots of people have disbelief after diagnosis but epilepsy is commonly not talked about yet it is more common than conditions that are mentioned frequently in the news. It can be a journey of sorts coming to understand the impacts and issues, so much varies for each person. Seizures can also change. Docs thought my child's epilepsy was from damage but now (years later) seizures changed and it is more likely to be genetic (genetic does not mean it runs in the family, it doesn't, more likely a de novo cause).

Porkette 12-27-2016 07:54 PM

Hi credo,

I had scar tissue on the right temporal lobe but I never had a seizure until I was 10 yrs. old. My advice to you is to have your family Dr. refer you to see an Epileptologist who is a Dr. that specializes in Epilepsy. This Dr. will do tests on you to find out why it took so long for the seizure to start and if it was the TBI or something else that triggered the seizure. You should stay away from anything with nutra sweet in it because that causes more excitement in the brain and can trigger seizures. Also lack of sleep and stress are the 2 main things that can trigger seizures for many people. Try taking vitamin B12 1000 mcg. once a day until you see a Dr. the B12 calms the nerves down and you can buy it right over the counter.

Here's wishing you only the best and May God Bless You!

Sue

ElaineD 12-28-2016 09:46 AM

Hi, credo,

This comes under the heading: It's always something, and then...it's something else." And usually something completely unexpected.

Did you have an EEG to get the diagnosis?

What are your symptoms like?

Welcome, and hugs, ElaineD

Wren 12-28-2016 02:28 PM

Have you had an MRI of your brain?


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