baby newly diagnosed with type one
 

Need some help because I am in rehab facility after being hit by car.

Trying to help my friend. Her two year old granddaughter' s blood sugar was over 400 when they brought her to hospital about five days ago. They had no clue she was TYPE ONE.

She went into diabetic meticulous and they finally got her sugar down to 250.

She is on lantus and another kind. They sent her home. Seems last night her blood sugar went to over 400 again. They don't understand why this is happening. They don't understand what is going on in her body. They are scared out of their minds.

I wish I could help but I have type two. And I am stuck in this rehab place.

Can you please explain why a baby's blood sugar can go to over 400? They just want to know what they are dealing with.

Thanks much

Melody

Here is a good link;
Notice that the blood sugars for little kids are higher than for adults.

Normal Blood Sugar Levels Chart for Young Children

Hyperness (excitement states) and illness seem to me to be
possible culprits.

The mother could test every 15 minutes when getting a high reading to see how long it lasts to see if it is temporary or not.

But what's with the high overnight readings? I am trying to find other parents who faced the same scenario.

I'll fix the title to diagnosed...instead of dish.. might get more replies then..

Wait till you hear this. Seems the baby's family knows the story of another family with a baby who had very high sugar, was put on insulin and then her pancreas had to mature and after awhile the kid did not need insulin anymore.

THIS IS POSSIBLE?????

Melody

Melody, the short answer to your question is that it is possible.

The peak age for diagnosis of Type I diabetes is 14 though this varies a bit. It is not common for a young baby to be diagnosed with Type I diabetes though this, rarely, can happen.

As mrsD has pointed out above, young babies can have fluctuations in blood glucose which are generally not a sign of Type I diabetes.

Hi Melody,

I've been type 1 diabetic for 35 years.

Most babies have very good control of their blood glucose from birth and I'm sorry to say the situation you describe is unlikely.

If a diagnosis of diabetes has been made there should be plenty of local health services to help guide them through this difficult adjustment. They will need to take BGLs regularly and learn how to adjust the amount of short acting insulin according to how much carbohydrate (incl. sugars) is eaten. Most foods are labelled.

Incorrect insulin dosage is the most likely culprit. Too much or too little insulin can cause high bgl (although counterintuitive, too much insulin can lead to a rebound high). They should keep returning to the endocrinologist or diabetic educator until they get it right.

Other causes of high BGL are infection, illness and hormones.

Go to the ER if the BGL remains high and if they don't have the confidence to give corrective short acting doses.


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Hi all.

The other day her sugar went to 580. That shocked even me. Their goal is 180 and they are happy when it's in the 300.

They asked me 'How did this happen". I read up on several articles and someone wrote; 'There might be a genetic link and perhaps earlier she was exposed to a virus or some kind of pathogen which made the body attack itself and it hit it's own pancreas, destroying islet cells and thereby making her a type one and she'll need insulin the rest of her life.

Any of you concur with this.

Also, and this is about the Lantus Pen and Humolog vials.

They asked me tonight 'how come she uses a Lantus pen but they use a vial and syringe for humalog insulin.? I looked on line and really can't find a good answer.

Anyone know why this is so. And any opinions on this is deeply appreciated.

Love all of you

Melody

Hi. Mrs. D. I don't get email notifications if anyone replies to my initial post so I came back here and wanted to update all of you. The baby spikes to 480, the doctor raised her Lantus to 4 units once a day. Then (this happened today). She was napping, her mother took her BS and it was 42. Right away she gave her two cookies and this tube of sugar thing so it would go higher. It took 30 minutes and it reached 78. Then it went to 180 and I don't know what it is now. She's sleeping. These lows happen all the time. The team wants her on the Omnipod. They have it in the house but the mom has to go for training and she hasn't done it yet. I believe she feels comfortable (right now), to continue testing and resolving it the way she does. The baby is almost 2 now. Just wanted to update. I have another question about diabetes that I'm going to post on a separate thread.

Hi. Have some more concerns about this poor baby. She has had several spikes from 42 to 400. The other day while she was napping, her mom took her sugar and it was 40. She immediately gave her some juice. In 30 minutes it went to over 400. Why is this happening. How can BS readings go from 40 to over 400 in 30 minutes. What exactly is happening when this occurs?
The mom (for whatever reason, and she has the omnipods in the house with all the refills) is not ready to go for training and put her on the pod. But she is doing a great job with the injections and she's on top of it.

Wouldn't the omnipod stop all those spikes?

These spikes....aren't they affecting the blood vessels in her eyes, and other parts of her body. She's only 23 months old.

Do you agree that the omnipod would be in her best interest?

Thanks much

Melody

At home meters are not accurate below 50 and above 250 or so.

Ever hear about Munchausen by proxy? I suggest that you back away from these people and leave them to the specialists.

And do NOT tell them anything more about it other than to
see the doctors.

I hear you. (re the Munchausen by proxy). But the grandma is a friend of mine. She has absolutely no clue how severe diabetes is. She always says "My cousin is a research scientist and we are waiting for a cure. It will come eventually". We all agree because this is all she can deal with now. The actual mother of the baby? Well, don't know what else there is to say.

I don't offer any other comments other than when I'm asked an opinion (for example "Why does this happen, etc." I simply answer "Diabetes is very complicated, it's different for everyone and there are no simple answers"

That's the best I (or anyone) could tell them. The mom does have a team and she always doesn't share (with her mom), what is going on.

Personally, I see real trouble down the road for this kid. How sad.

Mel
P.S. Thanks to all of you for your input. The first thing that leaped into my mind is "If there is a device that will eliminate spikes, you use that device" They are not using that device. Nuff said.

Melody, I agree with mrsD.

You could suggest to the grandmother that the child gets referred to a specialist endocrinologist, who would be able to do a detailed investigation (but don't do anything other than that).

Hi. She has a team consisting of endocrinologists. The grandmother suggests about the Omnipod but obviously can't make her own daughter use this on the baby.

I'm curious. Why the investigation scenario? The team did a thorough questioning when the baby was first brought in. The mom had to tell them every single thing about her pregnancy and everything that happened from day one. (found this out today). I just listen when the people talk. I do NOT offer any opinions other than "listen to the doctors".

Thanks much

Melody
P.S. I know what munchausen by proxy is. Scary even to think about it.