NeuroTalk Support Groups - "Think Outside the Box" LLMD Neurologist

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"Think Outside the Box" LLMD Neurologist

Dr. Elena Frid is located in New York. This neurologist is a rarity in that she is Lyme Literate and is one of the few doctors who treat children with Lyme. She can give a patient a thorough work up for Lyme/coinfections along with neurological diseases.

Elena Frid MD - Neuro-Lyme Specialist

Dr. Frid has often times helped people who have been to all the big teaching hospitals like Harvard or Hopkins and don't have a diagnosis. She also looks for root causes in people who have chronic fatigue, headache, and fibromyalgia diagnoses.

5 minute YouTube talk:
Dr. Elena Frid - ILADS 2016 Presenter - YouTube

Here is a podcast with Dr. Frid:

Start - 1:30
End - 54:20

128: Need-to-Know Lyme Info with Neurologist Dr. Elena Frid - The Running Lifestyle

An important point:

People can also develop neurologic symptoms when symptoms go undiagnosed for weeks or months, such as debilitating headaches, facial weakness (Bell’s palsy), numbness or weakness in limbs, muscles aches and twitches, difficulty moving, debilitating fatigue, dizziness, nerve pain, and so on.

My partner had just given her friend the name of the LLMD that we both used in the past when we had Lyme Disease. Although our doctor treats children, she gave her this doctor's information as well.
I had LD almost 15 years ago and during that time, it was very difficult to find a LLMD and even more difficult for those doctors to prescribe long term use of abx. I had found my doctor on Lymenet.org.
I'm not sure if things are still this way. I sure hope not because like you wrote, LD left untreated can lead to multiple symptoms/serious health problems etc.

Quote:

Originally Posted by madisongrrl (Post 1233699)

The place to find a LLMD is to contact ILADS.org. They will send you a list of clinicians in your state.

have you been her patient?

Quote:

Originally Posted by madisongrrl (Post 1233697)

i am looking for a neuro in nyc and dr. frid sounds great! i see that you are in the midwest so i am wondering if you were treated by dr. frid even tho she is in ny.

would you share your experience with her? thanks!

Quote:

Originally Posted by antonina (Post 1234262)

I have never been treated by her, but if I were to turn back time to 2014/2015 when I was still trying to figure out my illness, I would have made an appointment with her.