Does this make any sense?
 

Finally got a doctor to try mestinon for me, and it works. That means I must have some kind of mg, right? It works. Other people can see how much better I move and stand and look. We're calling them my "magic pills" because they have given me myself back after so many years.

Doctor started me at "1/2 pill (30mg) 3 times a day, work up to 1 pill (60mg) 3x a day". Turns out 1/4 pill every 2-3 hours works much better than letting it go up and down as it wears off in between only 3 hours a day for a bigger dose. Doctor says she's fine with that. Because I can breathe better, I keep it going all night, too, I wake up every few hours anyway (pain from other issues, and breathing issues).

Insurance insists we use a mail-order pharmacy after 2nd refill. Fine. Have mail order place call Dr's office for the prescription.

Just got first refill in the mail. Supposed to be 90 day's worth. Well, it's just 90 pills, 60mg each, with instructions "Take 1/2 pill every 6 hours as needed." But there's only enough for, at most, 1 pill per day, no matter how I split it up!!!

Why would they do this to me? Does the sheer stupidity never end?

What next, I get told, well, your blood test was negative, so we're taking the pills away, good luck, goodbye?

I guess you need to call the mail-order pharmacy and/or the doctor's office. It's a lot to do when you're not feeling well! What number of pills would you need to cover this time period? Maybe there was some mix-up or some misunderstanding at the doctor's office, and they prescribed for one month instead of three months. If so, see if the problem can be resolved, since this is the first time you are using the mail-order service. It sounds like your doctor is willing to work with you. It just might take some time to work out the kinks with the mail order pharmacy, I suspect. Hang in there!

Take care,
Erin

Don't be too hard on the doctor! When the prescription was written, the doctor didn't know that taking Mestinon sooner would be better. Just call the office and explain that. Only the doctor can redo the prescription. It's often normal for Mestinon to be prescribed that way, especially for those who don't have an outright definitive diagnosis.

Just make a phone call or two. I'm sure they'll help you out!

Annie