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-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   Perilymph Fistula (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/244819-perilymph-fistula.html)

JBuckl 02-07-2017 06:14 PM

Perilymph Fistula
 
Tomorrow I see an ENT doctor for vocal issues. However, I want to also bring up this head sensitivity problem that some on here seem to have.

I was talking with a lady on another forum, who also has the head sensitivity to movements and bumps. She was recently diagnosed with PF in both ears.

This one symptom is better than it has been in the past, but it still a major problem. Running, jumping, shaking my head "yes" and "no" leave me feeling dazed and light headed.

Mark in Idaho 02-07-2017 08:54 PM

Check out the past posts by RussiaRlz. I think he had PF treatment but was misdiagnosed and the ENT worked on the wrong ear at first.

Living_Dazed 02-07-2017 10:06 PM

I am very sensitive to visual stimuli, movement, and sound. It drains my neuro energy. Besides the tbi I also have vestibular nerve damage. Not sure if it's the tbi or the nerve damage that causes mine.

russiarulez 02-19-2017 11:21 PM

I'm the guy that Mark is referring to. You can find my other posts on the explanation of my surgery/outcome.
Long story short, the doctor talked me into doing a surgery even though the tests were inconclusive, he switched ears the day before the surgery, and I was desperate to do something. I felt worse for about three months even though the doc kept telling me it's normal (although his nurse told me that what was going on with me wasn't normal), and in the end was stuck with a $14K bill for a surgery that I didn't need.


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