Weird symptom -
 

This is something that started about two years ago. I just looked at it as one more thing on a pretty long list.

It began with my leg jerking in response to someone's kicking on the TV. Then my arm, then my torso would twist, also in response to something visual. It only happens when I'm reclined. It's always a violent movement and once it happens and I'm watching for it ... nothing.

When I google it I get Tourettes, Parkinsons, Myoclonus.

Mentioned it to my neuro. He'd never heard of such a thing.

Has anyone heard of something like this?

Hi SLee,

I see that your under a neuro and i'm not surprised that seizures haven't been mentioned?:)

My cousin has epileptic seizures and she said that's what it sounded like too. I've been shuttled from doc to doc since the late 80's. Dx fibro. I was referrred to an ENT when I started falling down and not knowing why, constant nausea, visual disturbances that I described as flippity eye, vomiting. The ENT thought Menieres or BPPV but the tests were normal. He said I needed to see a neuro who specialized in migraine. The "flippity eye" was as if someone jerked the world out from under me which is a whole different visual than vertigo or double vision which I also experience.

When I began to have the jerking he made a note but didn't see a connection to my issues. I am a walking muscle spasm. I take clonazepam, verapamil and flexeril among other meds. Dx from him was migraine variant.

The flippity eye has since turned into double vision and right eye droop. The jerking is happening more often as well as shaking and trembling with cold sweat when I get overheated or do too much.

I've had drs suggest RA, MS, Lupus, MG. It comes back to MS often. The last MRI of my brain was 2013. I'm due to see him next month so I'll just have to push a bit more for answers.

Hello SLee,

So seizures are in the family and regarding your movements with your body I was like that before I had a full blown grand mal seizure and how that came about, I went from top to bottom of the stairs through jerking in the legs and lost my balance, they had me in hospital a full week and then a seizure properly occurred plus double vision can come from seizures and it's through straining of the muscles in the back of the eyes, what my concern is the droop of the eye and I must suggest see your doctor as I've had that twice in the past and it could be Bells palsy.

Myself I think it's seizure related but there again i'm not a Doctor and there's that many different forms of epilepsy it needs a good specialist to find the underlining reason.

It could also be MS, I've got Lupus and it causes some issues:Sob:

Lupus - Symptoms - NHS Choices

:hug: Terry

What I need is for someone to sit down and look at every symptom I have and put the pcs together. One at a time it's maybe not concerning but when all put together it's pretty scary.

The eye droop comes and goes. I think Bells palsy hangs around awhile? I had a biospy of one of the many rashes I get and the rheum and the dermatologist both said not lupus. I also have negative ANA every time. I am extremely photosensitive.

Neuromuscular disorders run in my family too. MS, parkinsons, narcolepsy with cataplexy, epilepsy. At present I'm fighting an upper respiratory infection, earache and a bit of pleurisy.

Try taking magnesium supplements

I do take magnesium. That and riboflavin (B2) were the first things the neuro put me on. Drink water all day long too. I've had muscle spasms/cramps for almost 20 years, but this physical reaction to visual stimulis is fairly new.