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-   -   CRPS and other issues (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/249266-crps-issues.html)

BioBased 09-16-2017 09:44 AM

CRPS and other issues
 
I just found Dr. Gertson's paper on CRPS written in 2015. He elaborates on all the other issues that are involved with CRPS. I have several of these issues all which started after the CRPS injury. https://rsds.org/wp-content/uploads/...Depth-CRPS.pdf

One is dematological. I no longer can control the "rash" I have on both legs, which is identical in description and photo to what is in his paper. The burrowing sores, leave circular brownish red marks. My dermatologist called it eczema, but it is not at all like it. Does anyone else have this?

Becca71 09-17-2017 10:01 PM

I'm not so sure about this "paper" as far as saying MS and CRPS is the same?
But CRPS has many co-morbid conditions. I have a small rash on both feet that the Dr. called a CRPS rash. But it isn't large and nasty, thank goodness. I've seen pics of bad ones and ones that get infected, etc.
If you feel strongly it isn't eczema but CRPS related then see the pain doc instead of derm. Cause frankly a dermatologist isn't going to know what to do IMO.

BioBased 09-18-2017 10:13 AM

Becca, I am going to take this report to my PM doctor and put my pictures and my medical info with it. I noticed that the rash I have with the sores has one curious anomaly, hair! I had laser hair removal on my legs and feet, yet there is hair only growing where the rash is on both legs.

Becca71 09-20-2017 09:19 AM

Another one of those weird CRPS things. Abnormal hair growth. Either lack of or more than usual.

Nanc 09-20-2017 09:28 AM

Quote:

Originally Posted by Becca71 (Post 1251233)
I'm not so sure about this "paper" as far as saying MS and CRPS is the same?
But CRPS has many co-morbid conditions. I have a small rash on both feet that the Dr. called a CRPS rash. But it isn't large and nasty, thank goodness. I've seen pics of bad ones and ones that get infected, etc.
If you feel strongly it isn't eczema but CRPS related then see the pain doc instead of derm. Cause frankly a dermatologist isn't going to know what to do IMO.

I did not see where he said that MS and CRPS were the same. He did say that he treated nine patients with both MS and CRPS and they showed improvement with treatment. He did say that he thinks Fibromyalgia and CRPS are the same...not sure if I agree with that one!

Nanc 09-20-2017 09:32 AM

Quote:

Originally Posted by BioBased (Post 1251126)
I just found Dr. Gertson's paper on CRPS written in 2015. He elaborates on all the other issues that are involved with CRPS. I have several of these issues all which started after the CRPS injury. https://rsds.org/wp-content/uploads/...Depth-CRPS.pdf

One is dematological. I no longer can control the "rash" I have on both legs, which is identical in description and photo to what is in his paper. The burrowing sores, leave circular brownish red marks. My dermatologist called it eczema, but it is not at all like it. Does anyone else have this?

This "paper" is just power point slides from one of his talks. There is a great article from Dr Getson in the RSDSA summer 2017 newsletter talking about spread and other manifestations (I sent a copy to my dr). Here is the link to it https://rsds.org/wp-content/uploads/...ll-Edition.pdf

Nanc 09-20-2017 09:33 AM

Quote:

Originally Posted by Becca71 (Post 1251364)
Another one of those weird CRPS things. Abnormal hair growth. Either lack of or more than usual.

So true!! And don't forget the crazy nail growth too!!

ShaggyChic_1201 09-20-2017 03:25 PM

I thought it was me being bass-akward weird :)
 
Quote:

Originally Posted by Becca71 (Post 1251364)
Another one of those weird CRPS things. Abnormal hair growth. Either lack of or more than usual.

I'd always heard too much hair / long nails / hyper sweating. Not my thing tho. I'm a minimalist :D :D My right arm is as bald as a new born. I can get hot & my arms are still cold and dry. The backs of my hands sweat tho. Charming ;)

Not to hijack, but only have typing ability for a few more seconds. Anyone try Namenda (memantine) and want to share stories?

:grouphug:
Lori


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