New Member (MG)
 

Hello, I'm here searching for information on Myasthenia. Our daughter who just turned 21 has been tested for MG and the CT scan showed that she has hyperplasia of the thymus, (enlargement). The neuro said after a thymectomy, she has a 90% chance of possibly getting rid of the symptoms of MG in time... from 6 months on ... because the body needs time to get rid of the antibodies. I'm hoping to read about the experiences of people who have had a thymectomy. We have an appointment with a doctor who does the Da Vinci robotic operation, on August 24th. I wonder how long the downtime is after surgery as our daughter is going into her senior year of college. So far, her symptoms are being managed with 30 mgs. of Mestinon 3 times a day. She mainly had symptoms of trouble with speech, chewing, and her eyes won't close all the way so they are dry. Any help is truly appreciated. We're all overwhelmed with all of this as she was always a healthy, happy child who never had more than the common childhood diseases and/or a cold. Thank you

Hi, BRQQK75, welcome to NeuroTalk!

I hope you'll find the community here both helpful and supportive. Here's a link to the MG forum where I'm sure you'll find some discussions of interest.

http://neurotalk.psychcentral.com/forumdisplay.php?f=77

Feel free to jump in anywhere and do let us know if we can assist you in any way.:)

Hi BRQQK75
Im glad AfterMyNap put in the mg forum site, cos I dont know how, its a great forum, and tho there arnt alot of us, we arnt to bad.
MG is such a different disease for each person, and medication and thymectomy affect each person differently. If you go to the MG site and have a look, as Ive posted there about my thymectomy, if you cant find what you are looking for feel free to ask as many questions as you want, or you could private message me if you want.
Hope this helps, and I hope your daughter is doing ok

Hi BRQQK. Welcome to NeuroTalk. I'm sorry about your daughter's condition. I hope if she has the surgery the outcome brings health and happiness to your family. :hug:

Thank you
 

Thank you all for your welcome and words of encouragement... if anyone has any advice regarding what to do before or after a thymectomy, to help the outcome... please email me.

BRQQK75, hello and welcome to NeuroTalk. As you can tell we have a great number of members here to assit in any way they can. From links or just listening to others with open ears.

It is really hard see our young ones suffering. Give a great big :hug: for me.

Looking forward to seeing you around.

Darlene:hug: