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-   -   PCS now almost 3 years (https://www.neurotalk.org/new-member-introductions/249895-pcs-3-a.html)

Ilovemydogs 11-01-2017 07:01 PM

PCS now almost 3 years
 
So - I’ve joined. I read through all of these threads again and again when I had my concussion in 2015. I was off work for almost a year and a half. Went back to work (my GP wasn’t very supportive but I was suffering from extreme anxiety and really felt if I didn’t go back - that was it for my career). In retrospect, a terrible decision. The insurance company told me after a “RTW transition” (in name only, because my company worked me nonstop), that I would have to go full time with no restrictions or else I wouldn’t have a job. So I did. Fast forward six months, and things only got worse.

All symptoms worsened. I was falling a lot. No balance. Light and noise sensitivity got worse. My insomnia which was from day 1 of my concussion got worse and I was taking sleeping pills every single night. I started Sleep walking and cooked at night without any recollection and that scared me so I stopped sleeping pills cold turkey. I had to go off work again - and at this point I’m really not sure, is this just the new normal? I have a demanding job that has no tolerance for part time or transitions and so I really don’t know if I can do this. Oh yeah, and I had another bad accident a few months ago that ended up with me face first into the ground - again. Really struggling with my energy levels.

I hate leaving my house most of the time because I really end up paying for it. Tired all the time but noises lights and smells (new) exhaust me and nauseate me. Being around lots of people is exhausting. Having conversations is exhausting.

I now have to go through with the LTD process again which was very stressful the first time around. I have found that vestibular physio and yoga help, but sometimes I feel like I just can’t even look after myself! My dogs are the best and prob the only reason I’m not depressed 24/7. I’ve also tried Keto and holistic nutrition - have read through the supplements sucky. What am I missing? Is this the new normal? I’m almost 3 years PC but 2 months from my latest fall. Any ideas?

kiwi33 11-01-2017 08:20 PM

Hi Ilovemydogs

Welcome to NeuroTalk :).

I am sorry to read about your PCS.

I have no specific suggestions to offer you but I am very impressed with the wisdom and understanding of the members who contribute to the TBI/PCS forum here.

I am confident that if you share your story there you will get support and helpful suggestions there.

All the best.


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