New diagnosis on top of my CRPS......a very bad day..
 

After being seen by a new and wonderful doctor who helped me more than I can say. My CRPS was "under control" as much as it can be lol. Today, after dealing with what I thought was a flare in my left leg for 4-5 days, I thought I'd somehow dislocated my hip in my sleep or something. It was a different and still excruciating pain and decidedly NOT CRPS pain. I couldn't walk on my left leg at all! So baaaack to the ER, we all know how frustrating that is. Turns out. I have Lumbar Degeneritive Disc Disease in my L4 and L3......with a herniated disc as well. It will most likely require surgery. We all know what that can mean with CRPS. so this is how I'm feeling.
It's rare for me to now have such desperate moments with pain. I've grown used to it. Yes, it still hurts, even if it's not as bad as it was. Yes, I try to live my life without focusing on pain or on the downsides of my life. Today I've been struggling with new fresh pain on top of the old. One that most likely won't be easily delt with. One that exacerbates the old. Making it harder to sleep, and live. Thank God I'm a strong woman. I know I will make the best of this too. I'll live, love, and laugh a lot. I'm thankful for many things in my life.
In times like this though......I really wish I didn't have to be strong. To hide my pain. To deal with it at all. I get so tired of hiding, of struggling. So tired, but incapable of sleep. Sigh.
But I wouldn't give up the lessons I've learned, the small and huge kindnesses of friends/family/strangers, and especially not the ability celebrate the small things I've gained back.
I know I will rise up above this too, eventually. But man, I'm so tired of having no choice.....

It's just ugh. My view is we are gamblers. Lucky, on the one hand that we have medical options to repair us, but unlucky that those same options might easily advance our CRPS. It's high anxiety all the time, but we must persevere, and go where few have gone before. Body maintenance is just not the same for us as it is for other people!

I never in my wildest thoughts could have imagined going through brain surgery, but I did! Nor having repeat cerebral angiograms. OMG, I will need them for the rest of my life, endless dread.

It is hard not to focus on these set backs when pain is your constant companion, literally reminding you every second that things aren't quite right. It is tiring and it is awful, but as my daughters remind me "It beats the alternative." :winky:

Pretty much lol
 

I'm glad to hear your surgeries went well! I'm hoping if I have to have surgery my CRPS won't spread. It definitely nerve wracking!!! I'm supposed to contact a Neurosurgeon Monday for an MRI so I'll know for sure after the results. But it's definitely frustrating after getting my CRPS stabilized. Such is life though. I know I'll get through this too but I really didn't need this lolol. Thanks for the support

I'm so sorry to hear this. I know how it is when you feel like you have finally reached a point where you feel comfortable (not great because...you know...crps) and then something throws a wrench in things. You are so strong and you will get through it...but it is scary for sure. I know others have gone through necessary surgeries and come out the other side ok and there are some precautions you can take to help with that so definitely partner with your doctor to see what they can do to minimize the risk of spread. Best of luck to you...will be thinking of you. Keep us updated on how you are doing.

Its always something isn't it?