New here with CIPN - Rebuilder works?
 

I posted awhile back when I thought I had neuropathy per my Dr but I was actually anemic... Now unfortunately I definitely have CIPN.

I was diagnosed with breast cancer in Feb. Did 4 rounds of chemo including taxotere and had horrible toenail pain, numbness, pins and needles in my feet and some pins and needles in my hands. I was told symptoms would more than likely reverse themselves within 6 months of the end of Chemo. It's 7 months this week... :(


I am "OK" if I spend most of the day off my feet with my feet elevated @@ Christmas Day I hosted and when the last person was gone I burst into tears. My feet felt like they were literally on fire. The pain was so intense. My husband gets very frustrated because he doesn't know what to do other than feed me advil.

On top of that I have muscle pain and joint pain from the hormone therapy I am on. To try an ease that I have to make sure I don't sit still too long, I have to get up and move then I have the feet issues. I am in an endless loop of pain.

I walk like a waddling penguin. Even if I am having a good day I just can't seem to walk normal anymore, I walk on my heels.

My oncologist (CTCA in Zion IL) gave me Topricin cream which I think might work? I'm honestly not sure if it eases the pain or if I am imagining it and recommended the Rebuilder. I don't want to spend that much money on the rebuilder though without some concrete evidence that it works. There's also some systems that appear similiar on Amazon for much less.

I'd love to hear what other people have tried that may have helped.

Thanks!

I used the Rebuilder for 3 months, precisely following directions. It didn't help me. However, the company honored their money-back guarantee and allowed me to return it. There was a restocking fee so the refund wasn't in full, but I did get back most of the cost. The customer service was excellent and I stayed in touch with the on a regular basis, asking for advice. I think it does work for some people so it might be worth a try.

My husband's PN was a result of chemo and nutritional issues. He found the Rebuilder to be very helpful for his PN. He did this in conjunction with nutritional support and finally, reflexology. None of this was done all at once. This took a few years. Like most, you try something and it either helps or not. And you keep looking and trying things.

He first did B12, B complex and minerals. Though needed, did not have an effect on the PN. He added in Alpha Lipoic Acid which knocked back his pain level from and 8 to 5. The addition of the Rebuilder to his pain level down to 2, and sometimes a 1. It has never resolved 100% but going from a 9-10 on the pain scale to almost nothing is significant. He also takes a mitochondrial supplement that's helpful in general. The reflexology helps with flexibly and congestion.

I'm not clear what a Rebuilder is. I just did some checking and what I do for the circulation in my feet is and I've learned this work from PTs and do it at home every day.

Sit on chair or side of bed, do a marching in place exercise, Do it mild or give it some power. I do 15 times on each food and do 3 sets. The other one that does good is heel/toe flexes and again 15 times on each foot and 3 sets. I do
these every morning after a good night's sleep and all the blood is waiting to be awakened. Maybe this is what the rebuilder does. I know a bout a Rebounder but not a Rebuilder.