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-   -   Crps rsd X 22 yrs (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/250630-crps-rsd-22-yrs.html)

kirsti 01-15-2018 06:26 PM

Crps rsd X 22 yrs
 
Any help from ultrasound guided injection of numbing agent and steroid? Anything long lasting? Thanks in advance for help and your experiences! My Dr wants to try this referring me to sports med dr. Curious if it helps with long term red/crps.

Littlepaw 01-17-2018 05:18 PM

Hello and Welcome Kirsti :Wave-Hello:

22 years! you are quite a warrior.

I have had ultrasound guided injections of steroid + lidocaine to my tibial and plantar nerves. They were done by a Physical Medicine and Rehabilitation doctor who is certified in peripheral nerve ultrasound.

Mine were done partly to address surgical scar tissue to try to make some room in there but also to calm the nerves down. I did find them helpful. I had them pretty early on but it gave me a break and let me rehab better. It took something of a series of them. I had at least three. You gotta watch for atrophy in the injection area due to steroid with repeats.

Having the ultrasound guidance makes the injection much safer and better targeted. Of course there are risks with anything but the fact that the doc and I could both see the nerve on the screen made me much more comfortable than if it had been done blind.

I wish the best with whatever you decide is best for you.

Sending healing thoughts and soft hugs, :hug:

CRPSbe 01-21-2018 03:47 PM

22 years is a lot. Sadly I can't answer your question.

I have RSD/CRPS myself now, this September 22 years also. I'm nearing my 23rd year this year. Sad to say.

kirsti 01-21-2018 07:22 PM

Thanks for your reply Little-paw
 
Quote:

Originally Posted by Littlepaw (Post 1257768)
Hello and Welcome Kirsti :Wave-Hello:

22 years! you are quite a warrior.

I have had ultrasound guided injections of steroid + lidocaine to my tibial and plantar nerves. They were done by a Physical Medicine and Rehabilitation doctor who is certified in peripheral nerve ultrasound.

Mine were done partly to address surgical scar tissue to try to make some room in there but also to calm the nerves down. I did find them helpful. I had them pretty early on but it gave me a break and let me rehab better. It took something of a series of them. I had at least three. You gotta watch for atrophy in the injection area due to steroid with repeats.

Having the ultrasound guidance makes the injection much safer and better targeted. Of course there are risks with anything but the fact that the doc and I could both see the nerve on the screen made me much more comfortable than if it had been done blind.

I wish the best with whatever you decide is best for you.

Sending healing thoughts and soft hugs, :hug:




I'm curious whether or not I have both the CRPS and the neuroma. After 22 years they say I have a different type of CRPS and that if they can get the neuroma under control I will be healed! But I didn't get much relief at all from the first injection.
Thanks again.
Be well!
Kirsti

RSD31 01-22-2018 06:54 AM

I'm going on 38 years of RSD an still today get injection they are the only thing that helps with me I have to have a couple of injection to get any lasting effect so hang in there best of luck.

kirsti 01-29-2018 01:42 PM

Quote:

Originally Posted by CRPSbe (Post 1258017)
22 years is a lot. Sadly I can't answer your question.

I have RSD/CRPS myself now, this September 22 years also. I'm nearing my 23rd year this year. Sad to say.

Thank you for posting!

Nanc 02-04-2018 10:44 AM

Quote:

Originally Posted by kirsti (Post 1258029)
I'm curious whether or not I have both the CRPS and the neuroma. After 22 years they say I have a different type of CRPS and that if they can get the neuroma under control I will be healed! But I didn't get much relief at all from the first injection.
Thanks again.
Be well!
Kirsti

Hello! 27 years here and full-body. I didn’t think that an ortho would do such an injection...interesting. Are they talking about a nerve block or what? I have had various nerve blocks in the past, they helped more early on than they did many years into this. What do you mean by a “different type of CRPS”? Also, RSD/CRPS cannot be “healed” or cured, there is only remission :(

kirsti 02-13-2018 01:27 PM

Quote:

Originally Posted by Nanc (Post 1258604)
Hello! 27 years here and full-body. I didn’t think that an ortho would do such an injection...interesting. Are they talking about a nerve block or what? I have had various nerve blocks in the past, they helped more early on than they did many years into this. What do you mean by a “different type of CRPS”? Also, RSD/CRPS cannot be “healed” or cured, there is only remission :(

Thanks for your reply. Yeah-originally they said it was not from an injury but now it is? That's what they meant by different type. However I always mentioned it was after the brake rotor fell onto my foot. That is as far as I could tell what started the whole mess. And now I feel it has spread outward from the original area since the injection that I had. So that totally sucks. The injection was using an ultrasound to guide the sports medicine specialist to inject lidocaine and a steroid.

Wow-you must have a lot to deal with. Full body must be rough. Thanks for your kind reply!


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