getting tested for the LRP4 antibody
 

I have had MG since 2009. I have been tested for the AChR and MuSK antibodies several times each (and also LEMS), always negative. I was diagnosed with MG the third time I had a SFEMG (the first two came back borderline).

I have also had no significant response to Imuran, IVIg, or Mestinon.

My neurologist is going to test me tomorrow for the LRP4 antibody. He was surprised when I told him I had read that there's now a commercially available test, but he believed me, and found it.

I have tested negative sooo many times... I will be disappointed if I get another negative test. We are trying to build a case to the insurance company to try Rituxan. But how cool would that be if it's positive!

Abby

Here's hoping you get the results you want, and the insurance approval as well.

I am the one who posted that there was now an LRP4 test commercially available through Athena Laboratories. I am very glad that the time I have spent with that horrid big name doctor/facility, where I learned about the test, has turned out to not be a total waste, and someone is getting some benefit from it. This actually makes me happy about it.

Oh, it was you! I couldn't remember. Thank you!

Abby

By the way--I know all insurances are different, but it turns out mine will pay at in-network levels for out-of-network labs when no in-network lab does the test. The lab didn't know that, and if I hadn't thought to ask if there was "gap coverage," I wouldn't have known either. It's something to look into for other seronegatives who are being tested for the LRP4 antibody.

Abby