NeuroTalk Support Groups - CNS Vasculitis

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Autoimmune Diseases (https://www.neurotalk.org/autoimmune-diseases/)

- - CNS Vasculitis (https://www.neurotalk.org/autoimmune-diseases/251595-cns-vasculitis.html)

kell.steve@bigpond.

05-29-2018 05:47 PM

CNS Vasculitis

I have been told by 4 Neurologists that they feel I have CNS Vasculitis, this is after 3 years of investigations after finding white matter change to my brain. They do not want to do a brain biopsy yet to confirm? I really want to talk to people who may be affected by this disease, I have no idea of what my future is going to hold. If there are any preventions I can put in place. I really want to connect with people who know about this disease.

kiwi33

05-29-2018 08:22 PM

The information here might help you to discuss things with the neurologists you have seen Diagnosis and treatment of cerebral vasculitis.

kell.steve@bigpond.

05-30-2018 02:11 AM

Thankyou for your reply.. I still do not understand much of that. It is 6 months before I see my neurologist again. Really wanting to find others with this disease.

All times are GMT -5. The time now is 07:31 PM.