CNS Vasculitis
 

I have been told by 4 Neurologists that they feel I have CNS Vasculitis, this is after 3 years of investigations after finding white matter change to my brain. They do not want to do a brain biopsy yet to confirm? I really want to talk to people who may be affected by this disease, I have no idea of what my future is going to hold. If there are any preventions I can put in place. I really want to connect with people who know about this disease.

The information here might help you to discuss things with the neurologists you have seen Diagnosis and treatment of cerebral vasculitis.

Thankyou for your reply.. I still do not understand much of that. It is 6 months before I see my neurologist again. Really wanting to find others with this disease.