Joined the MIA Club...
 

Oh man! I have been so MIA I can't even find myself.:D

I am rarely on my computer anymore. I really need to get back in the habit of having my cup of coffee and catching up on NT friends.

My oldest daughter (DD28) had her first baby in February. She's a beautiful little one. DD28 ended up having to have an unplanned C-section. She was able to stay home with Reign until she was 2 1/2 months (I think). I have been helping them out for now watching her for a few hours a day. DD goes in really early in the morning (around 6) and my SIL goes in later. So, I only have her for a little bit.

I'm still living with DD26 (almost 27) and my grandson. Wow! Three-year-olds are a trip. I forgot that. It's like living with a little dictator.

My MS is about the same but the connective tissue disease is crazy!!! They've added another medication to help me. So far, it seems to be helping and it helps MS as well. It's like a 2 for 1.

As usual, it's hot in the desert! It's supposed to be around 110 tomorrow. I think I may just melt! I know. I always say that but I never do. It sure feels like it though. I can't imagine what people did before air conditioners.

I'll try to check in more often and get back in to a routine of morning coffee catching up.

Who else has been MIA? Check in if you can.

Mia?
 

Don't know if I've been MIA or AWOL, but I thought I'd check in tonight.

Glad to know your new meds are helping, Tricia. So you have a 3yo in charge at your place, eh? hehe! My daughter and family from AZ just left (Utah) today and drove home. Their 2yo was VERY busy!!! Broke a couple of things, kept changing the settings on the electronic dog door, so that the doggies were locked either in or out. Good thing we love 'em!!!

My MS is holding steady, I guess (no flares). Total body numbness continues to progress, but I can still type! I've recently developed a head/neck tremor, but haven't been to a doc for it. My son-in-law asked about it -- he is the first. Even hubby hasn't said anything.

I don't take any meds for MS or pain, so feel very blessed in that regard.

Guess that's it in a nutshell! Thanks for the thread, tkrik. :hug:

Hi Twink!!! How are you? I'll bet you had so much fun with the grands from AZ. What a nice cool break for them!!! That is too funny about your 2-year old grandson. It's so typical of them to do stuff like that. I'm sure you are exhausted from trying to keep up with him as well as the other grands that came to visit. How many does your DD have now? 5? 6? I lost track.:D

I'm sorry to hear that your numbness is progressing. That's the downside of this disease. For me, it's muscle fatigue. I guess it's time for a call in to your neuro about the head tremors. Those are so annoying. I get them occasionally.

We got air conditioning installed on Friday. Yay!!! We had an evaporative cooler, which works great when the humidity is low. Once the humidity increases it's almost useless because it's blowing wet air in to the house. It will be so nice to have a/c this summer. My body will certainly be happy.

I have my granddaughter today. She's peacefully napping beside me; not a worry in the world for little ones like her. She has so much hair!!! Omgoodness! She was born with a full head of long hair. Well, long for a newborn. I'd say her hair is about 4" long in places. It's so fine though that it sticks up all over, especially at the back of the crown. It's like peacock feathers. I sure hope it calms down by the time she starts daycare/school. Kids can be so mean.

I've been trying to do summer fun activities with my grandson. Yesterday, DD26 bought him a Play Doh dentist thing. Wow! Did he ever have a blast playing with that. He spend a couple of hours just playing and playing with it.

I hope you all are having a good day!:hug::grouphug:

I have also been MIA for a long time. Probably longer than a year. Maybe two? I do see some updates of folks on fb. I can't believe I have lived in Texas for almost 4 years. I love my little open plan house that I had built two years ago.

I keep busy hanging out with my sis and family. My niece Anya is going to be in 7th grade. I also go to a senior community center for chair yoga and game night. Also play bunco once a month with a fun group of women.

My MS continues to be stable. I am not on any ms medications and haven't seen a neuro since November 2014. I still use a cane when out and this Texas heat is at times too much, but I feel fortunate to have remained mobile.

Hi Barb!

It's hard to believe you have lived in TX for 4 years now. Also, it's hard to believe you have lived in your darling house for 2 years. Where does time go?

How is your sister feeling? I think of her often and hope she is doing well.

I have never been to a senior center except for visiting and a little volunteering. Is there an age restriction? I'm not there yet but am probably slower than many of those seniors. :o:o I would love to do a game night. I am not a competitive person but socially, games are great and fun.

I am glad your MS is now stable. Mine is as well. Like you, I am not on any MS meds, other than the methotrexate but that for the connective tissue disease but supposedly helps with MS. I have not had an MRI in...in...4 or 5 years now so I don't know if I have more lesions. I am slowing down a lot! The heat is brutal, huh? I hate summer. It seems to last forever!!!! It will be several months before it cools down, if it cools down. Last winter was warm, even hot some days.

Take care and post more often, Barb! I love hearing about your niece, family, and life in Texas.:hug::hug:

Hey there, Barb! Time is just flying by. I can't believe it's been 4 years since you moved.

The MS and The Stumble Inn forums have slowed down so much. I remember when they were the busiest forums here.

I'm glad to hear your MS is stable. I wish mine would slow down a bit. It's been in overdrive for the past 2 years.

I wish some more of the old gang would post here.

Hi Tricia!

Thanks for starting this thread. I wish more of the old gang would check in here.

I've got an appt. with a new Neurologist on the 24th. I'm hoping he will give me a prescription for LDN. I used to take it and I felt so much better on it. There is a clinical trial in CA that will do a stem cell procedure on you but it's pricey and not covered by insurance. So much out there but just an arms length away. :rolleyes:

Tricia, my granddaughters are 3 now. I can barely believe it. Seems like they were babies one day and talking and learning their ABC's the next.

I hate the heat, too. It seems to get hotter here each year and summer seems to last forever. Thank goodness for A/C. As I get older it seems to bother me more.

I also am MIA, only pop up once in awhile. Miss the old gang. I know we all have so many different reasons for not keeping up, like we used to.

Some have left us to go to the peace in the heavens. I have been a yo-yo with the MS. So many other problems. I have had depression hitting me at times, that I just don't want to do anything.

Sometimes I wonder which is worse at times MS or DEPRESSION !

Love reading all the posts.

Jappy :grouphug:

Hi Jappy,

I know what you mean, Jappy. Some days are OK......then others are just getting through it minute to minute. Not sure what sets that off. A memory of once being able to do things we'd like to be doing now. Or trying to do something we used to be ale to do and discovering that we're no longer able to do that anymore. Lots of different things happening.

I just try to take each new day as it comes and be appreciative of something......even if it's just the little bird that sings under my window every morning. The other day he wasn't there and I missed him and his little chirping. That showed me I still had things here to enjoy.

I am one of the "younger" members at the senior center at 61. I didn't go for the first few years that I was here, but joined a TOPS (Take off Pounds Sensinsibly) group that meets there. I met several women through that group and that led to me eventually going there for exercise and game night. I usually play train dominoes and it is just fun. We pretend we are competitive, but we just joking. Through those activities, I have met a few good friends.

My sister is doing well. For those of you who do not know she was diagnosed with esophageal cancer about 2 and 1/2 years ago. She had to go through chemotherapy and radiation and have two thirds of her esophagus and one third of her stomach removed. She had her last scan about 2 weeks ago and is cancer free. She doesn't have to have another one for a year. She was lucky in that she was diagnosed at an early stage. She has issues with side effects from the surgery and treatment but is grateful she is doing so well. She went back to work in January 2017 and is teaching full time. Right now she and her family are on vacation in Maine. They are enjoying the cool weather.

I am in my hibernation stage right now. It is just too hot to go out. I am looking forward to fall which usually doesn't arrive here until late October.

Kelly - Your granddaughters are only a couple of weeks younger than my grandson, right? They were born in November? I can't quite remember because Debbie had a grandbaby born around the same time too. I'm your little ladies are just beautiful!

I hope you get the prescription for LDN! That would be great. I remember you did well on it but at a certain dosage, right? It would be so nice for you to find something that would help you and LDN is not as expensive as any of the other meds out there, old and new.

Jappy - :hug::hug::hug: I think we have all been there with the depression, sometimes mild, sometimes not so mild. We all can understand what you are going through. I haven't had much trouble with depression. But, I recently started taking Allegra. OMGoodness!!! The depression was probably considered mild but to me it was concerning. I would wake up and almost dread the day. It was an awful foreboding type feeling. I did not like it at all. I stopped the Allegra and have been fine ever since. I was only on it for a couple of weeks. It gave me an insight into what people with depression experience, only worse. I am sorry you are struggling with that. We are here for you any time.:hug:

Barb - That's awesome!!!! Your sister is very, very lucky they caught it early. I am so glad to hear she is doing so well. I am so glad you went to the senior center and have met some new friends. That makes such a huge difference, especially when you are in a "new" place and live alone. I need to get out more but my driving is so limited. In fact, I got rid of my car and haven't replaced it. It needed way too much work, more than the car was worth. I hope you stay nice and cool in your cute little house.:hug::hug:

I'm part of the MIA crowd. I actually just bounced back over to NT, as my stepmom just dropped some MG news about her own health to me. Discovered over an eye droop and said that because she swims so regularly that other symptoms that define MG had gone unnoticed. She's about to have her hip replaced, so it sounds like she got a full work up of testing done beforehand.
I'm med free and lord willing in remission still.
The boys keep getting taller and taller. My poor DS2 his pants look ready for a flood, how quick that happened. We are all on summer break until the end of next month.

Everyone seems in good spirits over here at least.

My youngest, DS3 was up early but then DS1 said he was out cold on the floor. So in the spirit of good fun, I grabbed each pet hamster for photo ops. The first was the KO. Then at some point DS3 had relocated to the couch, flopped over sitting up and out came the other hamster for a pic saying that Team Rocket(hammys name) had carried DS3 to the couch after the KO. Silly, for sure, but fun times.
The three had stayed up super late watching movies, Fantastic Four and one other one--I said good night at that point :)

I'm just enjoying the AC. The last 3 summers here I braved open windows and fans. This year I said oh no...AC or bust.

Sent from my LGMS631 using Tapatalk

Good to hear from you GladysD. I remember when your boys were just little guys. Times flying.

I've been MIA for the past couple of days. I have developed lymphedema in my lower legs and it's been giving me a time of it. Blisters forming and then weeping so I have to have them wrapped each day by a visiting nurse. She's nice and we both enjoy the company and time to chit chat while she's wrapping but I'd enjoy it much more over a cup of coffee or lunch. :rolleyes:

If it's not one thing it's another. But I can't complain. I've got too much to be thankful for to dwell on the road blocks that pop up from time to time. They just remind me of the good things in my life.

Tricia, the grandbabies are so much fun but they aren't really babies anymore. Where did the time go? Just to hear them talking is such a joy. Whenever Evelyn comes in my door she announces herself like we haven't seen each other in years. "Gramma, I'm HERE!! I came to see you!" All the while she's charging through the door and throws herself on my lap (Ouch!!) with a huge hug. That will never get old but I know it will change so I'm enjoying it while it lasts. Never thought I could love two little girls as much as I love my own two boys. But it's possible! :grouphug:

GladysD - It's so good to hear from you! Your boys are growing up so fast! I hope you all enjoy the rest of your summer before heading back to school. AC is a must!!! How did you survive without it. Anything over 75 degrees starts getting really uncomfortable for me.:hug:

Kelly - How cute!!!! Evelyn sounds like such a little darling! I'm sure her sister has big hugs for you as well. I'm sorry about the lymphedema. :hug::hug: Is there anything else they can do for it?

Nothing new to report here. It's hot as heck out in the desert. It was awfully hot today. My grands are keeping me busy. I do enjoy them. At the end of the day, I am beat! I'm not sure how I did it when they were little. Of course, I was younger and didn't have MS that we know of and I'm sure that makes a huge difference. I sometimes think of all the young moms out there will little ones trying to manage MS at the same time. My heart really goes out to them. I am so thankful it all hit when my girls were in their teens and far more independent.

I hope you all are doing well and enjoying your summers and keeping cool!:hug::grouphug:

I think of the same thing, Tricia. I remember how active they were and I kept up with them. But if I felt like I do now...back then...I'm not sure I could have done it. I'm thankful, too, that my MS didn't hit when my boys were young. Not sure how that would have worked out but I'm sure it would have had to.....not much choice there. :rolleyes:

I am relying on my rollator and wheelchair 100% of the time now. No more spurts of time where I feel strong enough to go it alone. Makes me sad but what am I gonna do?

The heat is really getting to me this summer. I can't wait until we get some 70 degree days. Heck, even 80 degrees sounds great. Right now we are breaking records. I think this is the 3rd hottest summer on record, and I can't remember how many days we have had over 100 degrees. It is crazy when they report we may have a cold front next weekend and the temps may drop into the high 90s.

I have been having a new, weird symptom for the past few days. When I first get up and try to walk, it feels like my ankle is broke. After putting my weight on it and moving around for about 15 minutes, the pain goes away. I have also had a few old symptoms that I haven't experienced for a few years make a reappearance so I assume I am having a bit of a flare or the heat is causing it.

School started here yesterday so that makes me hopeful that we will see some break in the weather soon. Fires are starting to pop up too so some rain would be great. My niece started 7th grade, and is about 5'5 now. She will be 13 in November and is full of teen attitude. Puberty is so much fun.:rolleyes:

Barb - I hate the heat too! I keep waiting for the temps to drop. The mornings are cooling off so I know within the next month the temps in the morning and evening should be cooler. This morning it was in the low 70s!!! Yay!!! I am sure the heat is effecting your MS. I just went through a flare up of symptoms but no MS exacerbation. The humidity was high and I think that was part of it.

It's hard to believe that Anya is now going into 7th grade!! That's just crazy. Fun times are ahead for your sister, BIL, and yourself with a teen girl. You are such a great aunt to her. She's lucky to have such an awesome aunt.

I have been helping DD28 with her new business. I've been helping her cut and sew baby items. I'm hoping her Etsy shop will be running full swing soon. She opened it up about a month or so ago with just a few items. We've been sewing a bunch of new things that I'm hoping she'll post soon.
I've been watching sewing videos on YouTube and forgot how much I used to love making my clothes and special outfits for my girls (Christmas & Easter). I may give it a try. That should help keep me busy and renew old skills.

Hope everyone is doing well. Check in when you can.:hug::grouphug: