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-   -   Don't Give Up! You Must Be Your Own Best Advocate! (https://www.neurotalk.org/peripheral-neuropathy/251772-dont-own-advocate.html)

DavidHC 06-26-2018 12:33 PM

Don't Give Up! You Must Be Your Own Best Advocate!
 
I post this here not because of the specifics of the story or the condition under issue, though plenty of people on here have POTS. Rather, I post this because so many people with rare and invisible illnesses and symptoms, including on here, have been dismissed and ignored by conventional physicians, and all this at a time that they are most vulnerable. I've read so many such posts on here and elsewhere. I myself have posted about how I was told it was all in my head by two neurologists before I learned that they weren't even running the right test to diagnose me. Don't give up! You have to become your own best advocate.

POTS: Tori and Nick Foles battle 'the most common condition you've never heard of' - CNN


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