Hi-Im new- looking for support for DRG implant
 

About 3 weeks ago I had the implant surgery for the DRG. Things have not been going well. I had the trial back in May- 1st time in over 26 years pain free:) The trail was wonderful.
The implant surgery and the weeks since have been a total mess.

I had no clue how much different the implant would be from the trail.I had no clue how much wrong information about the surgery and recovery I was given.

I have had the drg remapped- and reprogrammed several times- After 3 weeks its just starting to be somewhat helpful.
Communication with my doctor has NOT been good. I am discovering things I should have known weeks before the surgery such as my diagnosis.

Thank you -

Hi MaeMe

Welcome to NeuroTalk :).

I am sorry to read about your DRG problems.

It might be an idea if you shared your experiences in the Chronic Pain forum (https://www.neurotalk.org/forum10/). Members who are in a similar position may well be able to offer you support and helpful suggestions.

All the best.

thank you
 

thanks for the advice - :)