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-   -   Hello from PA (https://www.neurotalk.org/new-member-introductions/25207-hello-pa.html)

kemmy18058 08-03-2007 03:17 PM

Hello from PA
 
Hello to everyone,

I'm new to this site and I'm so glad I found it. I have CIPN my symtoms started aobut 8 years ago. I had a sural biopsy in November 2006 from that I was misdianoised in December of 2006 and put on Predisone ( my version of Hell) which gave me Myopathy. I was taken off the predisone that took 4 months. My 3 doctors in PA said it was a vasculitis, I went to the Cleveland Clinic in March and they totaly disagreed and said it was CIPN. I have been on Lyrica since last July, I new I would gain weight from the predisone but I didn't realize that Lyrica would do the same thing.

I'm so glad to have found this site, its hard to explain to anyone with out this disease just how it feels. I haven't worked since last July and I'm on SSI I'm also see a therapist since I've had a hard time giving up my career. I'm unable to drive longe distant since I have no feeling in my feet.

But I'm happy to be feeling better and glad to be here.

Kathy :)

Alffe 08-03-2007 04:28 PM

Welcome to NeuroTalk Kathy. I don't know where to direct you because I am not familiar with CIPN but someone will come along with the link.

this is a great place to find support. :)

dorrie 08-03-2007 07:41 PM

Hi Kathy!!! Welcome to the community. We are so pleased to have you here!!:)

Darlene 08-04-2007 12:06 AM

Kathy,

Hello and welcome to NeuroTalk. You will find a good number of people here to assist as they can. Looking forward to seeing you around.

Darlene
:hug:

Julie K 08-04-2007 01:36 AM

Welcome.. I have PN too. I am sure you will find a lot of support here.

AfterMyNap 08-04-2007 08:22 AM

Hi, Kathy! :Wave-Hello: Welcome to NeuroTalk!

I'm glad you found us. You'll find this place filled with a supportive and informative bunch of good folks. Let us know if we can help you with anything.:)

babs3169 08-05-2007 08:55 AM

Hi

I'm from PA too.. and have PN..

I'm a newbie and I'll introduce myself in a sec..but wanted to say hi and :grouphug:

Dmom3005 08-05-2007 05:12 PM

Hi and welcome to neurotalk.

Donna

DM 08-06-2007 08:42 AM

Hi Kathy and Welcome to NT. :welcome_sign: Glad to see that you are feeling better.

Doody 08-06-2007 05:14 PM

Hi Kathy and welcome to NeuroTalk. This place is great.

Here is a link to our PN forum. http://neurotalk.psychcentral.com/forumdisplay.php?f=20

You'll find that everyone here is just wonderful. :hug:


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