Stem Cell Therapy
 

I have received so many Face Book ads and email ads for this therapy. I've watched YouTube videos about it and it seems safe and reliable.

I remember several years ago there as an Italian doctor doing this and it helped many people.

I've sent for some information about it. There is a location in IL that does the 3-day procedure. I have called and spoken to a lady about the process and got some very promising info. I'm thinking about trying this.

Has the Italian clinic published any case reports of successful use of stem cell therapy in medical journals?

I haven't looked because I couldn't remember the doctor's name to look him up. His name started with a "Z". I have done research on the clinic in Lake Forest, IL (TruStem Cell Therapy). I have also watched videos on YouTube about stem cell therapy and it's very fascinating.

I came across this today.

My take on it is that stem cell therapy looks very promising for people with MS.

Mesenchymal stem cell therapy in the spotlight. - MS Research Australia

Thanks, Kiwi. I just got a call from the doctor today that my medical forms all checked out and I'm cleared by them to have the procedure. I want to discuss with my Neuro next week when I go in for a follow up appt. I'm not sure what he will say.

I hope that your meeting with the Neuro goes well.

Wishing you the best of luck! From all I've researched in the past about stem cell therapies it almost sounds like a miracle, but the best kind that can be backed up by science and better still unlike Einstein's e=MC squared, a science that can be easily explained 😋.

Buyer beware.

I did a bit of research on this and visited a facility claiming success.

They did not follow through with phone numbers of patients who had positive results. I asked the % of people with ppms with any improvement and there was no follow-ups recorded.

No doubt, stem cell research seems promising but not in its present form. The only stem cell procedure that may look credible is one that addresses the brain miscue directing an attack of the white cells on the myelin sheath on the nerves.

Just as CCSVI appeared as promising, the current fancy operating centers look good and have fake testimonials.

Just a way to make money off hopeful consumers.

Thanks, Aarcyn. They have a FaceBook page (TruStem Cell Therapy) so I messaged a few people on there asking questions. They had not logged in for a few weeks so I called the patient advocate to see if he could contact any former patients to see if they would give me some credible reviews on the procedure. It was just this morning when I did this so I'll give them a few more days. I do have a little bit of hesitation to believe anything is this good. As much as I want something to work I need to do my research for this without being swayed by possibly untrue reviews. My son was the first person to tell me I needed to ask this company for some reviews and people who have had this procedure done. He's skeptical about things like this. He needs to look at, touch, take apart and put back together again before he believes it will work. I'll let ya'll know if I get some "legitimate" patients with promising reviews.

I have my Neuro appointment on Monday so I'll see what he has to say about this.

You are welcome, Kitty. For what it is worth, I asked my brother who is a neurologist. He said this kind of procedure is not ready and the companies offering the operation just prey on the vulnerabilities of the sick.

And I also asked my MS doctor. He said the same thing.

I found it odd that there were no patients references to give me immediately. And no follow up. No percentage of success stories immediately nor after a year.

Just like the hype of CCSVI, which I did because insurance covered it before denying the medical codes, waste of time and $250.

Thanks, Aarcyn. My oldest son was asking about the statistics, too. He said those should be readily available. It's hard not to get excited about something that could potentially give you part of your life back. But then I think about the patients who have improved......or say they have......who do you believe? :confused: $11,000 is a lot of money to dole out on something that may or may not work. It just makes me so mad that there are people willing to prey on the sick like this.....folks who are desperate to get their former lives back. Oh well, good things like this don't ever happen to me anyway. I'm not saying that to be depressing.....just honest.

Thanks for your feedback, Cyn. I'll keep ya'll posted on what, if anything, I get back from this company.

Well, I heard back from the patient advocate I've been emailing with. I had asked about statistics from former procedures and if l could see them. If I were doing something this groundbreaking I'd sure as heck be keeping strict statistics on everything about the procedure.

This was my answer: "Everything we have is anecdotal so it’s not exact unfortunately but for the patients we see here and follow up with, we see about a 2/3 success rate. Unfortunately we do not have any stats on how long it takes on average however I have noticed results come within the first 3 weeks to 3 month on average."

Needless to say I won't be having this procedure. I feel like it's just an opportunity for me to be a guinea pig in someone else's experiment. If anything they should be paying me!!

Just one more disappointment........

Kitty, I am very sorry that it turned out that way.

:hug:

Thanks, Kiwi. :hug:

I've learned over the years not to get my hopes up too high. Good things like this might have been generally don't happen to me.

I just wish these people, who are probably well intentioned, would think twice before advertising a miracle drug/cure. All they're doing is using the folks who get the procedure done as practice dummies. And raising the hopes of folks who have been let down too many times before.