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-   -   Stem Cell Therapy (https://www.neurotalk.org/multiple-sclerosis/252243-stem-cell-therapy.html)

Kitty 09-08-2018 02:27 PM

Stem Cell Therapy
 
I have received so many Face Book ads and email ads for this therapy. I've watched YouTube videos about it and it seems safe and reliable.

I remember several years ago there as an Italian doctor doing this and it helped many people.

I've sent for some information about it. There is a location in IL that does the 3-day procedure. I have called and spoken to a lady about the process and got some very promising info. I'm thinking about trying this.

kiwi33 09-08-2018 04:37 PM

Has the Italian clinic published any case reports of successful use of stem cell therapy in medical journals?

Kitty 09-08-2018 05:02 PM

I haven't looked because I couldn't remember the doctor's name to look him up. His name started with a "Z". I have done research on the clinic in Lake Forest, IL (TruStem Cell Therapy). I have also watched videos on YouTube about stem cell therapy and it's very fascinating.

kiwi33 09-09-2018 01:46 AM

I came across this today.

My take on it is that stem cell therapy looks very promising for people with MS.

Mesenchymal stem cell therapy in the spotlight. - MS Research Australia

Kitty 09-10-2018 11:18 PM

Thanks, Kiwi. I just got a call from the doctor today that my medical forms all checked out and I'm cleared by them to have the procedure. I want to discuss with my Neuro next week when I go in for a follow up appt. I'm not sure what he will say.

kiwi33 09-11-2018 12:44 AM

I hope that your meeting with the Neuro goes well.

Starznight 09-11-2018 07:05 AM

Wishing you the best of luck! From all I've researched in the past about stem cell therapies it almost sounds like a miracle, but the best kind that can be backed up by science and better still unlike Einstein's e=MC squared, a science that can be easily explained 😋.

Aarcyn 09-13-2018 03:23 PM

Buyer beware.

I did a bit of research on this and visited a facility claiming success.

They did not follow through with phone numbers of patients who had positive results. I asked the % of people with ppms with any improvement and there was no follow-ups recorded.

No doubt, stem cell research seems promising but not in its present form. The only stem cell procedure that may look credible is one that addresses the brain miscue directing an attack of the white cells on the myelin sheath on the nerves.

Just as CCSVI appeared as promising, the current fancy operating centers look good and have fake testimonials.

Just a way to make money off hopeful consumers.

Kitty 09-14-2018 08:16 PM

Thanks, Aarcyn. They have a FaceBook page (TruStem Cell Therapy) so I messaged a few people on there asking questions. They had not logged in for a few weeks so I called the patient advocate to see if he could contact any former patients to see if they would give me some credible reviews on the procedure. It was just this morning when I did this so I'll give them a few more days. I do have a little bit of hesitation to believe anything is this good. As much as I want something to work I need to do my research for this without being swayed by possibly untrue reviews. My son was the first person to tell me I needed to ask this company for some reviews and people who have had this procedure done. He's skeptical about things like this. He needs to look at, touch, take apart and put back together again before he believes it will work. I'll let ya'll know if I get some "legitimate" patients with promising reviews.

I have my Neuro appointment on Monday so I'll see what he has to say about this.

Aarcyn 09-15-2018 03:17 PM

You are welcome, Kitty. For what it is worth, I asked my brother who is a neurologist. He said this kind of procedure is not ready and the companies offering the operation just prey on the vulnerabilities of the sick.

And I also asked my MS doctor. He said the same thing.

I found it odd that there were no patients references to give me immediately. And no follow up. No percentage of success stories immediately nor after a year.

Just like the hype of CCSVI, which I did because insurance covered it before denying the medical codes, waste of time and $250.


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