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-   -   Any help is welcome - My story (https://www.neurotalk.org/peripheral-neuropathy/252328-help-welcome-story.html)

onefooter 09-21-2018 05:12 PM

Any help is welcome - My story
 
Hi All,

I discovered this forum recently and have been looking through the different threads. It seems like a true wealth of information. Using the search function, I didn't see any cases quite exactly like mine though so I will give it a shot and hopefully someone has some advice?

I am a 31 year old male in pretty good health. My PN started about 2 and a half years ago, and it only affects my left foot/lower leg. It hasn't spread from this area and I don't have any issue anywhere else in my body with PN.

My PN exhibits itself as a tingling/stabbing sensation all over my left foot, from the top, bottom, under the toes, the whole thing. It usually isn't numb, but sometimes when I am sitting, my middle three toes on that foot go numb. Never when I am standing.

It has gotten worse in the 2 and a half years but I would say it hasn't gotten worse in the last year and a half. That isn't to say it isn't awful. It feels like someone is stabbing my foot 24/7. I can't wear shoes any more, and airplanes are miserable.

A little background, I do not know if this is related or not, but I was born with a mild case of cerebral palsy that affected my right side only, everything on my right side is weaker than my left. This results in me doing nearly everything with the left side. I also broke a bone in my right foot about three months before the tingling started. Perhaps I shifted even more weight on my left?

I have been to numerous doctors. My primary was clueless, my chiro was clueless, a podiatrist was clueless, a neurologist was clueless......get the idea?

Chiropractor told me he could fix it and sold me 1700 bucks worth of adjustments/decompressions/medical massage/sports rehab. nothing has worked so far.

Blood tests came back normal. Not diabetic. a1c 5.3
MRI of both lumbar spine and left foot came back normal. Slight herniation of L4-L5 but nothing pressing on nerve.

Don't remember B12 off the top of my head but they said it was within normal range.

For vitamins I take alpha lipoic acid, turmeric, omega 3s, and nerve support formula from RHP.

Anyone have any ideas? I couldn't find any thread in which someone was suffering from this sensation in one limb only. Please help!

thanks

kiwi33 09-21-2018 06:12 PM

Hi onefooter

Welcome to NeuroTalk :).

I mentioned your CP to my partner (she was the boss psychologist of a CP organisation here). She wouldn't rule it out but had never come across somebody with CP and PN.

I hope that other members will come up with helpful suggestions for you.

Best wishes.


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