Mestinon massachusetts
 

My name is Joe. My girlfriend been diagnosed with MG for last 4 years. Having alot trouble swallowing and breathing. Muscles around her diaphragm. Positive Acetylcholine antibodies. Negative EMG, since had this test done. Her doctor took away her mestinon script. She has a very bad doctor. Doesn't know what's she's doing. Now girlfriend has suffer with no mestinon. I am very desperate. Anyone lives in Massachusetts that can help want donate or give some of their mestinon please let me know asap. Also, recommend a physician knows what their doing. Thank you Joe.

Hi Joe

Welcome to NeuroTalk :).

I am sorry to read about your girlfriend.

The MG forum is very active so I hope that other members will be able to help you.

Best wishes.

Joe, the doctor who diagnosed me with MG is in Massachusetts. His name is David Weinberg. He specializes in MG. He diagnosed me after many other doctors couldn't.

Dr. David Weinberg
ST ELIZABETHS MEDICAL CENTER
736 Cambridge St
Brighton, MA 02135
(617) 789-2375

Thanks, Abby!

Joe, if she is doing that poorly, she needs to be in an ER, right away. The inability to breathe well is an emergency. They can do breathing tests, arterial blood gas test, O2, and much more (like giving her oxygen if necessary and writing a Mestinon script). That will tide her over until she can see an MG expert.

After that, contact the neuro that Abby recommended!

With positive antibodies, how can a doctor take away Mestinon?! That's criminal. The doctor could be sued for malpractice (don't tell the doctor or anyone else that, though!). A negative EMG means nothing. A negative doesn't prove or disprove a disease state.

I'm so sorry she isn't doing well. There's no reason for that. Please, have her go to a good hospital close by and get some help. You don't want her to go into an MG crisis! Don't be scared, just take action.

:grouphug:
Annie