Single fiber EMG in NJ
 

I read a similar post as mine. All of my test were negative except the practical ocular tests and I have most of the symptoms of MG. I was referred to Columbia University Hospital for a single fiber EMG. They don’t take my insurance. Is there any advice out there?

Hi Simmybb

Welcome to NeuroTalk; I hope that you will find the community as supportive and knowledgeable as I have :).

I have no personal experience of MG but I am sure that members who do will offer you support and good ideas.

Best wishes.

Call around and find a neurologist who will/can perform the test. You will need a neurologist who takes your insurance when you begin treatment. I don't know where you are located; but I will tell you that you can have your treatment at home should they order Immune Globulin. When you get your test results and your neurologist is ready to begin treatment, you can find a specialty pharmacy in your area.

You will need a CT of your chest.

Also, if you have trouble finding someone who can test you then call your insurance company and see if they can give you a referral. Also, you can file for a review with a third party administrator. It will be via fax and your PCP will need to apply in your behalf. Your PCP can order the test, btw. SNFEMG

If you are in NJ I can give you my doctor’s information. She specializes in MG and she is the one treating me. I get IVIG at home, she is my life savor. I spent some time in Columbia Presbyterian hospital few years ago that was before I found my doctor. All my tests for MG were negative and I was diagnosed based on symptoms mostly. My doctor is a director of neuromuscular and EMG laboratory. Let me know if you want the contact.