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Nice to know you've been confirmed but ...
I know I hadn't been on the forums much, as I've
been pretty busy lately. With Level 4, being evaluated and then comes the felon who flees from a Deputy and plows into a Lady's car, and then flees again and plows (and destroys) my car which injured my son and I. Unfortunately, which caused me not only to loose a precious Top Notch Epi I had only seen 1 month, but also my Driver's License, and a heck a lot more. With the neck and back injuries and no vehicle, how the heck do they expect my son and I to receive treatment from Physicians? It had been extremely difficult recovery time, fortunately we used the monies to purchase bicycles as a method of transportation (buses & taxi services here are a joke and cost a fortune). While I already knew I suffered from Tonic Clonic (Grand Mal), Complex Partial, Absence (Petit Mal), Gelastic, and Nocturnal - from Neurologists that had diagnosed it before. Level 4 Epi changed the Complex Partial to Intractable Complex Partial and added Electrographic Seizures to the list. I knew about the electrographic seizures, it had been discussed to me before by my Neuros, but it was sporadic. But to have a Level 4 Epi to confirm it isn't good. That's 2 Epileptologists that have disclosed electrographic seizures on their documentations and it's always when I'm asleep. But neither Epi makes note of any Nocturnal(?). The Sleep Apenea had already been tested for several times and had been ruled out in the past. I'm somewhat sad having to loose a great Epi like this, but communication is very difficult (because I'm deaf even though I talk, but very dysarthric). This wonderful Epi & his P.A. do not deny the fact I have Epilepsy at all; I have no hard feelings whatsoever, but I can understand at the same time why they had to let me go, due to the Police Pursuit - as most likely they do not want any involvement. However, there are no lawyers, no lawsuits, no nothing, and the Felon still is in jail, and most likely will be in jail for a long time (with all those charges he's racked up). But at the same time I have mixed feelings within, is it fair for the patient? Things were going so well until that day the Felon came along and screwed it all up. With all honesty, there is no Epi better than HE is, he's the best there is in the United States, and he's the one who specializes in what I need the most. I feel like I got the short end of the stick. When my Primary Doctor assured me he was the best, my hopes soared, because I was looking forward to being normal or close to it. I wanted to get out of being homebound and get to work, and stop bouncing around from job to job without some type of provocation either seizure or migraine or both - migralepsy. All of this just was a crushing blow to me and now - I have really no one else to turn to, except my Old Neuro which isn't going to be the same. They already cut back on my med that Level 4 Epi had set me up on that was working. And his Med Assistant had instructed me that the Epi ordered me to stay on it. It's going to be really frustrating for me. Life is cruel! I hate Epilepsy! I hate being Deaf! |
I am now scheduled for another EEG Wednesday.
Fun Stuff - Not! |
I am sorry that life has been so difficult for you, Southie:hug: I am glad that you are here though. I love NT. I get so much support here. People here genuinely care about each other. Keep posting! It is the long weekend and people are away but hang around and soak up all the good stuff here! I hope you have a good day...more:hug: Dorrie:)
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argh
(((Sharon)))
certainly seems nothing is simple in life; sorry to read about the many complications. not sure i understand why the new Epi dropped you unless it is simply to stay away from lawsuits. i had an Epi once who made me sign (something) that stated that he would see me only if i would wave my rights toward ever using him in a court of law for any reason. it might be worth checking with his office to see if they would see you under those guidelines? i can only hope you and your son come out of this incident without any further complications. all my best toad |
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just walk out and go home (I was at the Hospital via the outpatient), having done this zillions of times, but this was the strangest one I've ever had. All I'm hearing is being blocked back again (in the Hospital). I arrived there out of sync, so one might say it was the 'perfect' timing to have an EEG done. Was still out of sync afterwards, having headache and deep urge to sleep. They (the staff) were worried and wanting me to sleep. I wasn't even sure where I was except I wanted to go home. I plowed into a saw palmetto (a type of a palm tree), and picked up my prescription, and even the Pharmacy Tech who knew me; wanted me to stay put, as she was saying my speech was so slurred and I was staggering, but I just wanted to go home. I nearly plowed into several mailboxes. (I don't drive anymore - I surrendered it voluntarily) So confused and in a daze was I until my neighbor drove by and saw me to tell me to hurry up and get home as a bad thunderstorm was coming quickly. I nearly got hit by a car because I forgot to look. Once I arrived home, I showered and slept until about 8:30 or 9:30 PM! And was still in a daze, my son could not understand a word I was saying. On my Caller ID - the Hospital Called, my PCP called, heck, everyone called - all while I was asleep! While I did try to cook, my son took over, and I was back in bed, asleep. I slept all night, and all day just about. My son told me I had to have had multiple seizures or at least a bad one. While I recuperated from it; I kind of wished I just went to the ER which was right across the street. I still don't know I how I got home. I didn't dare leave my house once I did. My Neuro will be evaluating the whole thing Monday. (I think) From there - I'm not sure what they're going to do. But they know I have Epilepsy, Intractable Complex Partials, Electrographic, Simple Partial, Absence, Tonic Clonic. So what went on there - I don't have the result or report yet. |
Update
My Neuro's Office called yesterday, they
have moved my appointment from Aug 31st to this Friday, so this can't be good news from my last Wed's EEG. I admit I'm a little nervous. |
Sharon,
My thoughts and prayers are with you.:hug: |
Grats on the move-up in appointments (Oh, how I love those). Good luck on the results, too!
*Hugs* |
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