Desperately need help for my mother... delayed radiation brain damage.
 

My mother is 53, 5' 5", 175 pounds, and Caucasian. She had brain surgery/chemo/radiation a few decades ago to treat stage IV glioblastoma multiforme cancer. About five years ago, we noticed her walking started getting worse. Fast forward to today - she is completely bedridden, almost no memory, needs help doing everything, etc. A few neuro docs know about it, and they say this is ALL due to delayed radiation damage. They say nothing can be done... But my mom is getting worse and worse so quickly... What is her future going to be like? We need help badly... Degeneration is happening rapidly! What else can we do? I keep thinking some "better" doctor might know more about treating delayed radiation damage. Something experimental? Honestly, I can't find jack about it online. I can't research this diagnosis on my own because the information just isn't here... Give us some guidance please!

I am very sorry to read about your mother; you have my deepest sympathy.

I am not sure how useful this is but one possibility is that the tumour has returned (a CT or MRI scan could help here) rather than what your mother is experiencing being a consequence of radiation damage.

With care.

Thank you so much! <3 Yes, she hasn't had a brain scan since the memory problems and confusion set in. However, she has had a brain scan far into the walking issues, and there was no cancer then.

Search on Pubmed for studies & info..

Pubmed? I'll look into that. Thank you!

Try searching in google scholar for delayed brain radiation damage.

Thank you!