MDA Symposium: National ALS Registry
 

Dr. Paul Mehta, M.D. was with Reshma Punjani and spoke about the national Amyotrophic Lateral Sclerosis registry and invited all amyotrophic lateral sclerosis patients to join. Their web site is here:

National Amyotrophic Lateral Sclerosis (ALS) Registry
National Amyotrophic Lateral Sclerosis (ALS) Registry - Home

I established an account early in the development of this web site but have not used the account . . . at the time the amount of data they possessed was limited; I will be reconsidering their data soon.