Was last here 15 years ago....
 

Hi All....I'm pretty sure this is the forum that I used to post in 15+ years ago, back when I was in my 30's. At the time, it was run off some servers in a basement at a hospital in Boston. All the login names seemed to have changed except maybe a couple that still look familiar. Has anyone been around here for 15+ years? I think I recognize a couple screen names....

Anyway, I am back because I'm have a re-occurrence of my still undiagnosed neurological symptoms - same numbness and dizziness but now worse and now a new symptom which frightens me quite a bit - leg weakness. I'm having an MRI in a couple weeks - brain, C, & T-spine. I am now 53. I can trace all of this weird stuff back to sensory symptoms and waves of dizziness since I was 28 - so, yes - 25 years of ago. These things waxed and waned for maybe up to 10 years with a few months of nothing in between the 10 years here and there but then poof - it all vanished for 15 years. In those first few years, I had at least 2 MRIs - brain & c-spine - both negative. Never had a spinal tap. MS specialist offered (seemingly begrudgingly), and I was thinking about doing that when my symptoms essentially vanished.

Well, now this crap is back, and it's not giving me much of a break...and I'm pretty depressed about it as I had talked myself into it not being MS for 15 years and actually thought it was gone for good. Plus the leg weakness is really frightening....none of my symptoms seemed to have gone after my mobility before. All of these symptoms wax and wane, but since this stuff and started up, it hasn't gone away, so it's a flare of "something". Two other symptoms which actually started months ago, which I had been successfully ignoring - a numb patch to the right of my spine, just below the bra strap - not entirely numb, just a weird feeling that I notice and also really loud tinnitus that sounds like hissing pipes when water is running. I blew both of these latter two things off, but they have been going on a few mos., and now I am suspicious they're related.

I'm not sure if I have any actual questions for you all....just saying "hi" for now....from a forum old-timer. Does anyone know what happened to that fellow who was always such a walking encyclopedia of knowledge - he had read every PubMed article and was up on the very latest in every trial. He was on Copaxone, as I recall. His screen name was an ode to his dog....but then I think he changed it. I wish I could remember his screen name....

Cheers all,

hootswithowls

Hi hootswithowls and welcome to NeuroTalk(NT).

It appears you are talking about Braintalk(BT). BT had problems and was not a viable site for quite some time. Doc John started NeuroTalk for the many of those who were lost without BT. Many of those members decided to stay at NeuroTalk even after BT came back online.

This is why some usernames are familiar to you :) Even though this is not were you started out 15 years ago you are very welcome here :)

Best wishes on your upcoming MRIs and I hope you receive some answers, 15 yeas is a long time with symptoms nd no answers :(

Take care!

Thank you
 

Thanks, Snoopy!! Ahh, "Braintalk" was the old forum. Yes, you are right. That's where I last posted 15+ years ago. So, it appears that Braintalk is still around - ******************** I just took a look and recognize a bunch more screen names....so that must be the reincarnation of it.

Thanks again, Snoopy!!

Cheers,

hootswithowls