Well I'm Back....Not 100% But I'm Here
 

Back in May (5/8) I went to the hospital for a SEVERE MS exacerbation. They also uncovered a pretty bad UTI. They decided to admit me and it ended up being for 10 days.

They kept me in bed for 10 days even though I begged to get out of bed just to stand. I kept telling them I wouldn't be able to walk if they kept me in bed that long without letting me a at least stand up.

Just as I suspected when they discharged me I could not walk. I had to go to a rehab for PT (5/17) . They (PT) discharged me (6/17), too, and I still could not walk!

The AL took me back but is now telling me that I need an additional care and it's going to cost me $2,068 more per month!!

I don't know what's going to happen but I don't have that much extra money each month. They are talking like I'll have to leave if I cannot pay the extra money.

This has me so upset that I can't eat or sleep. What on earth am I going to do? Where will I go? Seems like they should not have accepted me back and told the P T rehab that I wasn't
ready.

Kitty, this is way outside my experience but I am thinking about you.

:hug:

I wonder why they wouldn't let you walk, most hospitals around here want patients moving asap..
Were they short on staff to assist and thought it a risk/liability?

Kitty.

Sometimes I have to tell my self the answer is there is no answer. Life can really suck.

What a nightmare. Do they expect you to be out on the streets with a tin cup in your hand begging for handouts so you can afford to return?

Does this place have anything like a human services coordinator or social services person--someone you can explain your situation to and ask what your options are? I hope so.

I’m so sorry this is happening. Sending love and hugs.

I'm so very sorry, Kitty! Please check back in and bring us up to speed asap. Sending gentle hugs and prayers. Love, Twink

Kitty, I haven't seen anymore posts from you since the two on June 22 and I am wondering how you are doing. Take care :hug:

Hello again. So sorry I haven't posted in such a long time. I'm better but still have a long way to go. My kids have been a blessing to me and have gotten me in a nice assisted living community.
I'm going to rehab next week after I have a suprapubic catheter placed. Hoping it helps cut down on the UTIs so I can get well. I will write more later
Typing on this phone Is hard for me. I have missed everyone and hope you are all doing well.

It is good to hear from you Kitty.

I hope that things will work out well for you.

:hug: